Screening for sickle cell and beta thalassaemia - watch videos of people's experiences of screening for sickle cell and beta thalassaemia, Thalassaemia, Sickle cell, antenatal scans, newborn scans : Healthtalkonline

Full list of topics

Carrier screening during or before pregnancy :
Carrier screening during pregnancy
Carrier screening for other reasons
Partner carrier screening
Feelings about the results

Views about screening :
Messages to other parents

Telling people you're a carrier :
Telling people you are a carrier: Implications for family
Telling people you are a carrier: Implications for relationships & marriage

Diagnostic tests in pregnancy :
Deciding to have diagnostic tests
Reasons for deciding not to have diagnostic tests
Experience of having diagnostic tests
Getting diagnostic test results
Deciding what to do after diagnosis
Continuing with an affected or at risk pregnancy

Pre-implantation genetic diagnosis :
Pre-implantation genetic diagnosis

Newborn tests :
Newborn screening after screening in pregnancy
Newborn screening without screening in pregnancy
Newborn screening - the effects on parents

Understanding the conditions :
Awareness/understanding about the conditions
Living with sickle cell disorders
Living with beta thalassaemia major & intermedia
Seeing other family members/friends' experiences

Information and communication with professionals :
How well do people understand the tests offered?
What kinds of information do people want?
Explaining genetics and risk
Communicating results
Advising people about their options
Values and religious beliefs
Sources of support
Timing and delay
Improving the system

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Screening for sickle cell and beta thalassaemia

Publication date: October 2006 Last update: August 2012

Review date: August 2014

We interviewed 39 people about their experiences of antenatal and newborn screening for sickle cell, beta thalassaemia and other haemoglobin variants. Select from the key topics below, choose from the full list of topics, or explore all the interviews.

Interviews in other languages, Urdu: Interview 22, 30, Mirpuri: Interview 21, 24, Sylheti: Interview 16, Français: Interview 14, 18, 20, Português: Interview 25.

Partner carrier screening

Messages to other parents

Telling people you are a carrier: Implications for relationships & marriage

Living with sickle cell disorders

Sources of support

Improving the system

People's Stories

People's stories: watch and hear all interviews