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• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 08 >> She took into account the effect she believed her baby's Down's syndrome would have on her, her marriage and the whole family.

Her 2nd pregnancy: felt unwell throughout pregnancy, AFP test at 16 weeks indicated that baby might have Down's syndrome, later confirmed by amniocentesis. Pregnancy was ended by induction at 21 weeks. She felt insufficiently prepared or informed about baby's post mortem.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 04 >> Her husband felt he would always have to be 'on guard' and protecting their child with Down's syndrome and that it would put him under too much pressu

She had an early termination, 2 miscarriages and a normal pregnancy. Her 5th pregnancy was ended by induction at 21 weeks - baby had Down's syndrome detected by amniocentesis. Since then she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 23 >> She realised she would have to sacrifice her other children and her family for the sake of her baby who needed several serious heart operations.

She has 3 children (1st, 3rd and 4th pregnancies), and ended 1 pregnancy. 2nd pregnancy: everything seemed fine until 20-week scan which found heart defects. Specialist cardiac scan identified hypoplastic left heart syndrome. Pregnancy ended by induction at 21 weeks. Parents agreed to post mortem. Since then she has had two children.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 8+ years since pregnancy ended >> Interview 20 >> She has ended 3 pregnancies because of a genetic disorder and feels people should be more realistic about the strain of caring for a disabled child.

She has had two children (1st and 5th pregnancies), 2 miscarriages and 1 stillbirth. She has ended 2 pregnancies. 2nd pregnancy: anomalies detected at dating scan, so she was scanned regularly. By 18 weeks multiple abnormalities evident- sent for amniocentesis. Pregnancy ended by induction. Post mortem identified multiple pterygium syndrome - a genetic disorder caused by both parents having recessive gene. 4th pregnancy: IVF treatment, scanned at 10 weeks and anomalies detected- sent for amniocentesis. Pregnancy ended at 17 weeks. Amnio identified Down's syndrome.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 38 >> She got upset when her aunts took photographs of her baby to send to their families.

Mother of 1 child, married to her first cousin. 2nd pregnancy: 12-week scan normal. 20-week scan detected anomalies in the baby's brain. Specialist scan confirmed multiple abnormalities. Pregnancy ended at 20 weeks by induction. Post mortem indicated baby had proliferative vasculopathy with hydrocephaly (Fowler syndrome). Sent for genetic counselling, established she and her husband carriers of gene responsible for syndrome. She was pregnant at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 35 >> He doesn't feel strong enough to go through another set of IVF and another pregnancy and is grateful for the child he's got.

Father of 1 child. 2nd pregnancy: wife felt unwell throughout pregnancy. Nuchal scan at 12-weeks arranged privately, advised to have CVS - no problems detected. 20-week scan found baby had heart problems. Specialist cardiac scan confirmed baby had multiple problems in heart, stomach and spleen. Pregnancy ended by feticide and induction at 22 weeks. Post mortem confirmed multiple abnormalities. He is undecided about whether he wants another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 30 >> Feels that her baby's heart problems would have affected every aspect of family life.

Her 2nd pregnancy: felt unwell and sick throughout pregnancy, some bleeding at 6 weeks. 11-week scan confirmed viability. 20-week scan detected heart abnormalities. Specialist scan identified tricuspid atresia and ventricular septal defect. Pregnancy ended by induction at 22 weeks. She has had another child since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 22 >> Looking back she realises that she put her husband under strain because she was so determined to get pregnant again after the termination.

Her 1st pregnancy: some bleeding and sickness, scan at 7 weeks confirmed pregnancy. 12-week scan normal. Triple test at 19 weeks, found raised AFP levels. 20-week scan identified hole in baby's heart and shortened limbs. Specialist scan found 2 holes in heart and abnormalities in limbs, bowel and brain- sent for amniocentesis. Pregnancy ended by induction at 21 weeks. She has had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 32 >> Describes how his physical relationship with his wife was affected by worrying about the risk of conceiving another baby with abnormalities.

His wife's 3rd pregnancy: 20-week scan detected anomalies - baby's kidneys and stomach couldn't be seen. Specialist scan revealed baby had multiple abnormalities; parents agreed to amniocentesis which confirmed baby's problems were not inherited. Pregnancy ended at 22 weeks by induction. Since termination he and his wife (EAP07) have had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 19 >> Feels that his role was to help his wife recover properly by making sure she had enough time and space to herself.

His wife's 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents (see EAP05) carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 37 >> Thinks that it has helped his wife that he was there to listen and talk to her.

Father of 2 children (1st and 3rd pregnancies, see also EAP36). 2nd pregnancy: 20-week scan detected anomalies. Sent for specialist scan, baby diagnosed with holoprosencephaly. Amniocentesis. Pregnancy ended by induction at 21 weeks. Genetic counselling. 4th pregnancy: 12-week scan anomalies detected - baby diagnosed with anencephaly. Pregnancy ended surgically at 13 weeks, his wife had gynaecological complications after the termination. Expecting another baby at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 31 >> He feels that men should be strong and describes how he helped his wife in practical ways.

Mother's 1st pregnancy (father's 4th - he has 3 children from previous marriage). IVF pregnancy, some bleeding, 8-week dating scan at IVF clinic. 12-week scan no problems found. 20-week scan detected choroid plexus cysts (soft markers for Edwards' syndrome). Specialist cardiac scan indicated heart defects- sent for amniocentesis. Pregnancy ended at 22 weeks by feticide and induction. They have had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 33 >> Feels that he and his wife supported each other through the termination and that he has accepted her anger and distress about the baby.

Father of 1 child. His wife (EAP 24) has heart condition and takes warfarin (heparin during pregnancy). 3rd pregnancy: 7-week scan confirmed pregnancy viable. 12 week scan no problems found. Nuchal scan at 13 weeks found baby had shortened femur, no tibia or fibular on right leg. Specialist scans confirmed diagnosis of 'lower limb deficiencies'. Pregnancy ended at 17 weeks by induction.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 35 >> He tried to support his wife in all kinds of ways and realised the most difficult thing was keeping up a brave face.

Father of 1 child. 2nd pregnancy: wife felt unwell throughout pregnancy. Nuchal scan at 12-weeks arranged privately, advised to have CVS - no problems detected. 20-week scan found baby had heart problems. Specialist cardiac scan confirmed baby had multiple problems in heart, stomach and spleen. Pregnancy ended by feticide and induction at 22 weeks. Post mortem confirmed multiple abnormalities. He is undecided about whether he wants another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 19 >> Describes feeling very anxious about the possibility of going through another pregnancy.

His wife's 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents (see EAP05) carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 35 >> Describes how he responds when people ask him questions about his family.

Father of 1 child. 2nd pregnancy: wife felt unwell throughout pregnancy. Nuchal scan at 12-weeks arranged privately, advised to have CVS - no problems detected. 20-week scan found baby had heart problems. Specialist cardiac scan confirmed baby had multiple problems in heart, stomach and spleen. Pregnancy ended by feticide and induction at 22 weeks. Post mortem confirmed multiple abnormalities. He is undecided about whether he wants another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 07 >> She cried everyday for weeks before realising after several months that she was starting to think about other things.

Her 3rd pregnancy: 20-week scan detected anomalies - baby's kidneys and stomach couldn't be seen. Specialist scan revealed baby had multiple abnormalities; parents agreed to amniocentesis which confirmed baby's problems were not inherited. Pregnancy ended at 22 weeks by induction. She has since had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 15 >> Describes feeling in limbo afterwards and says that it had helped her to get away from home for a while.

Her 1st pregnancy: Triple test at 16 weeks indicated baby was at high risk of having Edwards' syndrome. Amniocentesis confirmed Edwards' syndrome. Pregnancy ended by induction at 19 weeks. She and her husband agreed to post mortem. She has since had another two babies.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 08 >> She and her partner decided to get married on the first anniversary of the baby's death so that they wouldn't dread the date in future.

Her 2nd pregnancy: felt unwell throughout pregnancy, AFP test at 16 weeks indicated that baby might have Down's syndrome, later confirmed by amniocentesis. Pregnancy was ended by induction at 21 weeks. She felt insufficiently prepared or informed about baby's post mortem.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 29 >> He felt great sympathy for his wife but didn't feel the loss as much as she did.

Their 2nd pregnancy: mother had gestational diabetes so had regular blood tests and scans throughout pregnancy. Amniocentesis at 16 weeks was clear. Scan at 30 weeks indicated neural tube defect. Detailed scans indentified alobar holoprosencephaly. Pregnancy was ended by feticide and induction at 31 weeks. Parents declined post mortem. They have had another baby since the termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 35 >> Describes how he and his wife felt extremely sad for some time after the termination and that his experiences have made him more emotional.

Father of 1 child. 2nd pregnancy: wife felt unwell throughout pregnancy. Nuchal scan at 12-weeks arranged privately, advised to have CVS - no problems detected. 20-week scan found baby had heart problems. Specialist cardiac scan confirmed baby had multiple problems in heart, stomach and spleen. Pregnancy ended by feticide and induction at 22 weeks. Post mortem confirmed multiple abnormalities. He is undecided about whether he wants another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 34 >> Found it difficult to talk to friends about the termination and was offered some help through his work.

His wife's 1st pregnancy: 12-week scan no problems detected. 20-week scan detected several anomalies. Specialist scan identified problems with brain development, later diagnosed as Dandy-Walker malfunction. Amniocentesis ruled out Edwards' syndrome. Specialist cardiac scan detected heart abnormalities. Pregnancy ended by feticide and induction at 22 weeks. Post mortem identified multiple abnormalities. He and his wife are hoping for another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 18 >> She and her partner found the support of friends and family and several visits from a chaplain they liked was enough for them.

Her 1st pregnancy (through IVF). 6-week scan at fertility clinic. Had nuchal scan done privately at 12 weeks. Baby found to have anencephaly. Pregnancy ended surgically at 12 weeks. She has had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 04 >> ARC (Antenatal Results and Choices) gave her people to talk to when her husband didn't want to talk and helped her keep the baby's memory alive.

She had an early termination, 2 miscarriages and a normal pregnancy. Her 5th pregnancy was ended by induction at 21 weeks - baby had Down's syndrome detected by amniocentesis. Since then she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 21 >> [About her partner] 'He did try hard... he's very good at talking about things'.

She has had 2 children (1st and 3rd pregnancies), 3 miscarriages and ended 1 pregnancy. 4th pregnancy: had some bleeding, arranged first scan privately at 8 weeks. Felt unsure of viability of pregnancy, had 12 week scan, no anomalies found. Arranged nuchal scan and blood tests privately and several anomalies were detected. CVS identified Edwards' syndrome. Pregnancy ended surgically at 15 weeks. She has had 2 miscarriages since the termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 06 >> Neither of them feel ready to have another baby because they haven't yet come to terms with the termination.

Their 2nd pregnancy: 20-week scan showed baby seemed small for his dates. Further specialist scans at 28 and 32 weeks showed baby's head was small. Mother also had amniocentesis and MRI scan. Baby diagnosed with microcephaly. Pregnancy ended at 34 weeks by feticide and induction.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 23 >> She found it difficult having sole responsibility for signing the consent form because ending the pregnancy was a joint decision.

She has 3 children (1st, 3rd and 4th pregnancies), and ended 1 pregnancy. 2nd pregnancy: everything seemed fine until 20-week scan which found heart defects. Specialist cardiac scan identified hypoplastic left heart syndrome. Pregnancy ended by induction at 21 weeks. Parents agreed to post mortem. Since then she has had two children.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 05 >> She had chosen not to see her baby but knowing that a photo had been taken she became quite desperate to see what she looked like and was upset.

Her 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents are carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 30 >> She and her partner felt that keeping their baby and coping long-term with her heart problems could jeopardise their relationship.

Her 2nd pregnancy: felt unwell and sick throughout pregnancy, some bleeding at 6 weeks. 11-week scan confirmed viability. 20-week scan detected heart abnormalities. Specialist scan identified tricuspid atresia and ventricular septal defect. Pregnancy ended by induction at 22 weeks. She has had another child since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 08 >> She took into account the effect she believed her baby's Down's syndrome would have on her, her marriage and the whole family.

Her 2nd pregnancy: felt unwell throughout pregnancy, AFP test at 16 weeks indicated that baby might have Down's syndrome, later confirmed by amniocentesis. Pregnancy was ended by induction at 21 weeks. She felt insufficiently prepared or informed about baby's post mortem.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 8+ years since pregnancy ended >> Interview 09 >> 'He was a rock'.

Her 2nd pregnancy: 20-week scan found baby had anomalies. Preliminary diagnosis after specialist cardiac scan was that baby had serious heart defects. Pregnancy ended by induction at 24 weeks. Post mortem revealed baby had hypoplastic left heart syndrome and an unbalanced chromosomal translocation (Robertsonian translocation of 13 and 14). Genetic counselling found that mother and her mother are carriers of a chromosomal disorder or translocation of the chromosomes. Since termination she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 12 >> She and her partner got caught up in the pregnancy - their lives started to change as did their feelings about starting a family.

Her 1st pregnancy: 20-week scan indicated anomalies. Detailed scanning showed the baby had severe form of spina bifida. The pregnancy ended by induction at 20 weeks. She has polycystic ovarian syndrome and was taking folic acid before the pregnancy, she now takes a larger dose. One miscarriage since the termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 12 >> Explains that she found it easier than her partner to understand the baby's diagnosis because of her professional training and work experience.

Her 1st pregnancy: 20-week scan indicated anomalies. Detailed scanning showed the baby had severe form of spina bifida. The pregnancy ended by induction at 20 weeks. She has polycystic ovarian syndrome and was taking folic acid before the pregnancy, she now takes a larger dose. One miscarriage since the termination.