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• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 22 >> Everyone thought she was alright but she decided to have bereavement counselling for 10 weeks which helped.

Her 1st pregnancy: some bleeding and sickness, scan at 7 weeks confirmed pregnancy. 12-week scan normal. Triple test at 19 weeks, found raised AFP levels. 20-week scan identified hole in baby's heart and shortened limbs. Specialist scan found 2 holes in heart and abnormalities in limbs, bowel and brain- sent for amniocentesis. Pregnancy ended by induction at 21 weeks. She has had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 02 >> Explains that her hospital offered bereavement counselling routinely and says that she appreciated having appointments on her own.

Her 1st pregnancy. Spina bifida detected by AFP test and scan at 16 weeks. She and partner decided to seek second opinion privately which confirmed diagnosis of spina bifida. Pregnancy ended by induction at 17 weeks, followed by post mortem. Mother has epilepsy and took extra folic acid during pregnancy. Since interview she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 22 >> Everyone thought she was alright but she decided to have bereavement counselling for 10 weeks which helped.

Her 1st pregnancy: some bleeding and sickness, scan at 7 weeks confirmed pregnancy. 12-week scan normal. Triple test at 19 weeks, found raised AFP levels. 20-week scan identified hole in baby's heart and shortened limbs. Specialist scan found 2 holes in heart and abnormalities in limbs, bowel and brain- sent for amniocentesis. Pregnancy ended by induction at 21 weeks. She has had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 32 >> Describes how his physical relationship with his wife was affected by worrying about the risk of conceiving another baby with abnormalities.

His wife's 3rd pregnancy: 20-week scan detected anomalies - baby's kidneys and stomach couldn't be seen. Specialist scan revealed baby had multiple abnormalities; parents agreed to amniocentesis which confirmed baby's problems were not inherited. Pregnancy ended at 22 weeks by induction. Since termination he and his wife (EAP07) have had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 32 >> He felt helpless when he saw his wife in distress and thinks that it can be difficult for men to sort out their feelings about termination.

His wife's 3rd pregnancy: 20-week scan detected anomalies - baby's kidneys and stomach couldn't be seen. Specialist scan revealed baby had multiple abnormalities; parents agreed to amniocentesis which confirmed baby's problems were not inherited. Pregnancy ended at 22 weeks by induction. Since termination he and his wife (EAP07) have had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 16 >> She realised she needed counselling after about 3 months when she was spending hours sitting by her son's grave.

Her 4th pregnancy: experienced sickness during first trimester and felt unwell. Blood test at 16 weeks detected Down's syndrome. Amniocentesis confirmed Down's. Pregnancy ended by induction at 19 weeks. Following the termination she had a stillbirth. (In 2005 she had another baby.)

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 21 >> She tried to be normal for the sake of her children but eventually saw her GP and was offered counselling.

She has had 2 children (1st and 3rd pregnancies), 3 miscarriages and ended 1 pregnancy. 4th pregnancy: had some bleeding, arranged first scan privately at 8 weeks. Felt unsure of viability of pregnancy, had 12 week scan, no anomalies found. Arranged nuchal scan and blood tests privately and several anomalies were detected. CVS identified Edwards' syndrome. Pregnancy ended surgically at 15 weeks. She has had 2 miscarriages since the termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 10 >> She found it difficult to admit she needed help and tried several complementary therapies, exercising and eating healthily.

Her 2nd pregnancy: 20-week scan indicated serious abnormalities. Amniocentesis and scans identified Patau's syndrome. Pregnancy was ended by induction (no feticide at her request) at 24 weeks. Since then she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 34 >> He didn't want to be given advice and was offered the chance to talk things through with someone at work.

His wife's 1st pregnancy: 12-week scan no problems detected. 20-week scan detected several anomalies. Specialist scan identified problems with brain development, later diagnosed as Dandy-Walker malfunction. Amniocentesis ruled out Edwards' syndrome. Specialist cardiac scan detected heart abnormalities. Pregnancy ended by feticide and induction at 22 weeks. Post mortem identified multiple abnormalities. He and his wife are hoping for another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 36 >> She couldn't see anyone or go out much for several months so her GP advised her to take anti-depressants and she also had counselling.

Mother of 2 children (1st and 3rd pregnancies). 2nd pregnancy: 20-week scan detected anomalies. Sent for specialist scan, baby diagnosed with holoprosencephaly. Amniocentesis. Pregnancy ended by induction at 21 weeks. She experienced post-natal depression. Sent for genetic counselling. 4th pregnancy: 12-week scan anomalies detected - baby diagnosed with anencephaly. Pregnancy ended surgically at 13 weeks. She had gynaecological problems following termination. She was pregnant at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 18 >> She and her partner found the support of friends and family and several visits from a chaplain they liked was enough for them.

Her 1st pregnancy (through IVF). 6-week scan at fertility clinic. Had nuchal scan done privately at 12 weeks. Baby found to have anencephaly. Pregnancy ended surgically at 12 weeks. She has had another baby since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 13 >> She worried that the pills would hurt her baby and wished health professionals had shown more concern about the baby's well being.

Her 1st pregnancy: heavy bleeding in first trimester caused by ovarian haematoma. 20-week scan found insufficient amniotic fluid - possible premature rupture of membranes. Parents advised that baby could have lung damage/ breathing difficulties - uncertain prognosis. Pregnancy ended by induction at 23 weeks. Post mortem indicated that baby's development not affected by rupture of membranes. Twins born since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 19 >> He recognises he is being illogical about the injection but he saw it as a 'dreadful intrusion'.

His wife's 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents (see EAP05) carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 05 >> Explains how when she ended her first pregnancy she decided not to see or hold the baby.

Her 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents are carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 36 >> She appreciated the way the hospital chaplain helped her deal with what she had done and that he blessed her baby.

Mother of 2 children (1st and 3rd pregnancies). 2nd pregnancy: 20-week scan detected anomalies. Sent for specialist scan, baby diagnosed with holoprosencephaly. Amniocentesis. Pregnancy ended by induction at 21 weeks. She experienced post-natal depression. Sent for genetic counselling. 4th pregnancy: 12-week scan anomalies detected - baby diagnosed with anencephaly. Pregnancy ended surgically at 13 weeks. She had gynaecological problems following termination. She was pregnant at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 21 >> She's learned that you can recover from ending a pregnancy and put your experiences to good use.

She has had 2 children (1st and 3rd pregnancies), 3 miscarriages and ended 1 pregnancy. 4th pregnancy: had some bleeding, arranged first scan privately at 8 weeks. Felt unsure of viability of pregnancy, had 12 week scan, no anomalies found. Arranged nuchal scan and blood tests privately and several anomalies were detected. CVS identified Edwards' syndrome. Pregnancy ended surgically at 15 weeks. She has had 2 miscarriages since the termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 34 >> Found it difficult to talk to friends about the termination and was offered some help through his work.

His wife's 1st pregnancy: 12-week scan no problems detected. 20-week scan detected several anomalies. Specialist scan identified problems with brain development, later diagnosed as Dandy-Walker malfunction. Amniocentesis ruled out Edwards' syndrome. Specialist cardiac scan detected heart abnormalities. Pregnancy ended by feticide and induction at 22 weeks. Post mortem identified multiple abnormalities. He and his wife are hoping for another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 30 >> It helped her partner to be able to talk to a GP who had personal experience of ending a pregnancy.

Her 2nd pregnancy: felt unwell and sick throughout pregnancy, some bleeding at 6 weeks. 11-week scan confirmed viability. 20-week scan detected heart abnormalities. Specialist scan identified tricuspid atresia and ventricular septal defect. Pregnancy ended by induction at 22 weeks. She has had another child since termination.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 02 >> Explains that her hospital offered bereavement counselling routinely and says that she appreciated having appointments on her own.

Her 1st pregnancy. Spina bifida detected by AFP test and scan at 16 weeks. She and partner decided to seek second opinion privately which confirmed diagnosis of spina bifida. Pregnancy ended by induction at 17 weeks, followed by post mortem. Mother has epilepsy and took extra folic acid during pregnancy. Since interview she has had another baby.

• Topic
• >> Ending a pregnancy for fetal abnormality >> Counselling and other kinds of support >> Counselling and other kinds of support

Counselling and other kinds of support 

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> Counselling and other kinds of support >> Counselling and other kinds of support

Counselling and other kinds of support 

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 05 >> She used a medical website to find out more about Walker-Warburg syndrome which made her feel that she was something of an expert on the condition.

Her 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents are carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 38 >> Her consultant looked up Fowler syndrome on the internet for her but only found a paragraph about it and then she went for genetic counselling.

Mother of 1 child, married to her first cousin. 2nd pregnancy: 12-week scan normal. 20-week scan detected anomalies in the baby's brain. Specialist scan confirmed multiple abnormalities. Pregnancy ended at 20 weeks by induction. Post mortem indicated baby had proliferative vasculopathy with hydrocephaly (Fowler syndrome). Sent for genetic counselling, established she and her husband carriers of gene responsible for syndrome. She was pregnant at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 8+ years since pregnancy ended >> Interview 09 >> She wanted her baby to have a post mortem to help find a cure for hypoplastic left heart syndrome.

Her 2nd pregnancy: 20-week scan found baby had anomalies. Preliminary diagnosis after specialist cardiac scan was that baby had serious heart defects. Pregnancy ended by induction at 24 weeks. Post mortem revealed baby had hypoplastic left heart syndrome and an unbalanced chromosomal translocation (Robertsonian translocation of 13 and 14). Genetic counselling found that mother and her mother are carriers of a chromosomal disorder or translocation of the chromosomes. Since termination she has had another baby.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 8+ years since pregnancy ended >> Interview 20 >> Explains that the baby's post mortem pinpointed her 'dud genes' which made her feel the termination was justified.

She has had two children (1st and 5th pregnancies), 2 miscarriages and 1 stillbirth. She has ended 2 pregnancies. 2nd pregnancy: anomalies detected at dating scan, so she was scanned regularly. By 18 weeks multiple abnormalities evident- sent for amniocentesis. Pregnancy ended by induction. Post mortem identified multiple pterygium syndrome - a genetic disorder caused by both parents having recessive gene. 4th pregnancy: IVF treatment, scanned at 10 weeks and anomalies detected- sent for amniocentesis. Pregnancy ended at 17 weeks. Amnio identified Down's syndrome.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 1-2 years since pregnancy ended >> Interview 38 >> Describes her baby's Fowler syndrome which was the result of both her and her husband having the same recessive gene.

Mother of 1 child, married to her first cousin. 2nd pregnancy: 12-week scan normal. 20-week scan detected anomalies in the baby's brain. Specialist scan confirmed multiple abnormalities. Pregnancy ended at 20 weeks by induction. Post mortem indicated baby had proliferative vasculopathy with hydrocephaly (Fowler syndrome). Sent for genetic counselling, established she and her husband carriers of gene responsible for syndrome. She was pregnant at time of interview.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 3-4 years since pregnancy ended >> Interview 05 >> She approached her baby's post mortem in a very practical way because she wanted to be certain that everything possible was discovered about the baby'

Her 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents are carriers of recessive gene. 4th child born in 2004.

• Pregnancy & children >> Ending a pregnancy for fetal abnormality >> 5-7 years since pregnancy ended >> Interview 23 >> She got pregnant again quite quickly but felt emotional all the way through because she was still grieving for her other baby and was worried about th

She has 3 children (1st, 3rd and 4th pregnancies), and ended 1 pregnancy. 2nd pregnancy: everything seemed fine until 20-week scan which found heart defects. Specialist cardiac scan identified hypoplastic left heart syndrome. Pregnancy ended by induction at 21 weeks. Parents agreed to post mortem. Since then she has had two children.