Interview 05  

Interview 05

Age at Interview: 40
Sex: Female
Background: Pregnancies ended in 2002 and 2003. No of children: 2 + [2]. Ages of other children at interview: 3, 6 months. Occupations: Mother - NHS manger, Father - company director. Marital status: married. Ethnic background: White British.

Brief outline:Her 2nd pregnancy: 20-week scan detected neural tube defect. Specialist scan confirmed encephalocoele. Pregnancy ended at 23 weeks by feticide and induction. Post mortem identified Walker-Warburg syndrome - a genetic abnormality. 3rd pregnancy: nuchal scan revealed baby had anomalies, and by 19 weeks scan showed hydrocephalus. Pregnancy ended at 20 weeks by induction. Walker-Warburg syndrome identified at post mortem. Both parents are carriers of recessive gene. 4th child born in 2004.


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Feels sad that she found herself in a position of having to make such a difficult decision but knows she made the right decision for her though others may not understand.

 



Yeah, I think it's for me, if I did this 100 times, this decision again I wouldn't change my decision. I don't have, knowing what I now know about the condition that the babies had and etc, etc, I don't have any dissonance about ending a pregnancy. I have a great sadness that I needed to face that decision and go through what we went through, but I never for a moment think either of the babies should have been born and been allowed to wither or survive for moments or days or whatever. 

What I, I think I feel uncomfortable with is people not understanding it fully enough, and drawing their own conclusions about why we did it. And perhaps them in some how viewing it as, you know, the kind of designer baby stuff, you know, that them viewing that in somehow this baby was mildly imperfect and that we ended it's life. Because in a sentence you can't get across, you know, why we did it and why we believe it was the right thing for us to do. 

And so I think that's why I sometimes feel uncomfortable about saying “termination” because I know they won't really understand, you know, the difficult decision we took when we made that, you know, albeit quick decision, you know, the difficulty and how ill the babies were and all that kind of stuff. 

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