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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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A further scan also suggested she was at low risk of Down's syndrome, but she still wanted amniocentesis to know for certain.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN31
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They were both very upset, and couldn't talk about what they would do until they had the CVS (Chorionic Villus Sampling) results.
Problems detected in first pregnancy at nuchal scan - confirmed as Down's syndrome by CVS. Couple decided to end the pregnancy. Subsequent normal pregnancy and birth.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN37
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He feels people should be more fully informed about the purpose of screening and that it could lead to termination.
Couple declined screening on principle in previous two and current pregnancy. Had a scan at around 20 weeks in two pregnancies for dating purposes only.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN22
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The person doing her 20-week scan said it was a waste of money if people would not consider termination.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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They decided against termination, but had amniocentesis to check if the baby had a chromosomal condition as well as a heart condition.
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN08
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She might have considered amniocentesis if her scan results had shown she had an increased chance of something being wrong with the baby and she was f
Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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They needed definite confirmation that the baby had Patau's syndrome, and agreed with medical advice to have amniocentesis.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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She described the screening process as a 'Pandora's box' where one decision leads to another.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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Her brother's unexplained severe learning disabilities made her worried about screening and pregnancy.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She felt reassured she had done as much as she could by having screening and genetic testing.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
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