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Pregnancy & children
Antenatal Screening
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Full list of topics
Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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Parents need to know early enough about nuchal scans to be able to book privately if necessary.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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For first-time mothers it is difficult to know what questions to ask and what information you need.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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Staff had informed her clearly about screening options but she knew other women who had been less well informed.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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She was still waiting for some blood test results to come back months later, including for sickle cell disease.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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She did not feel she had much choice about screening and would have liked more information and explanation.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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The written information was better in her current pregnancy than her first and the midwife discussed it carefully with her.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN23
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Written information from her midwife was helpful, but she still had unanswered questions.
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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Her midwife's discussion of screening and possible consequences was excellent.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN08
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Books can be helpful, especially in a first pregnancy, but they can also make you anxious.
Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN21
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She had the combined nuchal scan and blood test privately, but found out only just in time that it was available.
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN14
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The midwife explaining her scan results got the graph the wrong way round, but checked it with a colleague.
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of the babies' position.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN01
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Having a friend who had recently had problems in pregnancy made her worried about screening.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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Her first 20-week scan was professional but brief. The second time she had a specialist midwife who made it a happy experience.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Their daughter's Down's syndrome was not formally diagnosed for two weeks after birth, but the mother had already wondered about it.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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Having sympathetic care during the termination was important, including a midwife who cried with her and held her hand.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN40
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The midwife gave them excellent information about Down's syndrome and about the process of termination, but with hindsight it might have been better t
Down's syndrome detected by amniocentesis in first pregnancy. Couple decided to end the pregnancy. Baby son born since.
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