• Clip
• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN38 >> They continued the pregnancy because they needed to know in future they had given their baby every chance.

Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.

• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN38 >> It was a relief to decide to continue with the pregnancy, but also a time of grief.

Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.

• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN29 >> In her next pregnancy she had screening again. She would not want to see another baby suffer like her son.

After four miscarriages, scan in fifth pregnancy found heart defects. Couple decided to continue the pregnancy. Son, now 4, has had some additional problems. Pregnant at time of interview.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN10 >> Although it was a shock to find her baby had hydrocephalus, she now feels her daughter has been a very positive influence on her life and given her ne

Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN10 >> It helped her to know she was not the only parent to have negative feelings. It was difficult to share these feelings with close family.

Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN03 >> They were telephoned about their daughter's heart operation when they were going out for the evening. Parents need time to relax and enjoy themselves.

Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN19 >> A friend who had a child with Down's syndrome worried about what would happen to the child when she died.

Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN23 >> Having seen her cousin's experience of Down's syndrome, she would not want to see her own child go through the same thing.

After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.

• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN30 >> Having a baby with Down's syndrome has been a positive influence on their lives. The anxieties they faced did not feel very different from any other p

Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN25 >> She would want to be prepared for having a baby with Down's syndrome, having seen a friend's experiences.

Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN28 >> Her brother's unexplained severe learning disabilities made her worried about screening and pregnancy.

Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN28 >> She was anxious about her mother's feelings about genetic testing because of a family history of learning disabilities.

Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN39 >> You can never predict how you would react if you found out something was wrong with your baby.

Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN21 >> From previous experience, she felt having a baby with Down's syndrome would put pressure on her relationship with her husband.

Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN23 >> Written information from her midwife was helpful, but she still had unanswered questions.

After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.

• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN04 >> Meeting the oldest surviving child with hypoplastic left heart helped her imagine a future for her son. She felt she had been unprepared for how tough

Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN10 >> She felt determined to help her daughter make progress, and took pride in her achievements, even though she often felt guilty and tearful about pushin

Baby born in April 2002 with hydrocephalus which had not been picked up during screening. Baby has had surgery and is making good progress.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN36 >> It was valuable advice to take time to reflect on their decision to end the pregnancy and keep testing each other's feelings. They have positive memor

Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN39 >> They were worried about what life would be like for a child with a severe heart condition, and how it would affect family life with their older daught

Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).

• Pregnancy & children >> Antenatal Screening >> Normal results or declining screening >> Interview AN08 >> Books can be helpful, especially in a first pregnancy, but they can also make you anxious.

Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN02 >> From her experience of meeting children with Down's syndrome she did not realise the range of disability and health problems it could involve, from mi

1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN35 >> In making their heartbreaking decision to end the pregnancy at 17 weeks, they wanted to do what was best for their daughter and their family.

Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN36 >> Counselling after the termination helped her and her husband understand their different ways of grieving.

Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN35 >> The father felt more certain than the mother that they had done the right thing. Going back to work helped him recover.

Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN16 >> They felt relieved after taking the mifepristone tablets, and began to feel ending the pregnancy would be a positive experience.

Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN16 >> Deciding whether to continue or end a pregnancy can place great strain on relationships. It has to be a joint decision.

Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN12 >> Having another baby with Down's syndrome would have major implications for the family, but it would be difficult to contemplate termination. Media ima

Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.

• Pregnancy & children >> Antenatal Screening >> Ending an affected pregnancy >> Interview AN16 >> Communication became difficult and hostile during the 12-week scan in her second pregnancy. They discovered the baby had died.

Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.

• Pregnancy & children >> Antenatal Screening >> Continuing with an affected pregnancy >> Interview AN15 >> Having her daughter has made her less selfish, but looking after her is very tiring. Uncertainty about her future has greatly strained relationships w

Following two miscarriages, during next pregnancy had frequent scans. A scan at 8 months unexpectedly found hydrocephalus and brain problems. Termination offered but rejected.

• Pregnancy & children >> Antenatal Screening >> Baby's condition detected after birth >> Interview AN12 >> Discovering her daughter had Down's syndrome meant she had to change career plans. Caring for her is hard work, but some of the problems are created b

Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.