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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
Clip
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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Her brother's unexplained severe learning disabilities made her worried about screening and pregnancy.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She was impressed with the genetic counselling and testing she was offered, and found it reassuring.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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She was anxious about her family history of Down's syndrome, although genetic tests showed no evidence it was inherited.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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She was referred to a prenatal diagnosis clinic because of anxiety about a family history of stillbirth and hydrocephalus. A scan at 13 weeks was reas
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN24
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She decided not to tell her mother she was pregnant at first because it would make her anxious too.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She was anxious about her mother's feelings about genetic testing because of a family history of learning disabilities.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN28
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She felt reassured she had done as much as she could by having screening and genetic testing.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
>>
Antenatal Screening
>>
Normal results or declining screening
>>
Interview AN24
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A further scan also suggested she was at low risk of Down's syndrome, but she still wanted amniocentesis to know for certain.
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN23
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Having seen her cousin's experience of Down's syndrome, she would not want to see her own child go through the same thing.
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Pregnancy & children
>>
Antenatal Screening
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Normal results or declining screening
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Interview AN11
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Having a great-aunt who had Down's syndrome, she would want to know in advance if her baby had the condition, but would continue the pregnancy.
Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
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