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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Blood test screening
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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She knew scans were not just for parents to see their baby, and felt doctors had a responsibility to explain the purpose.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN22
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She decided to have no screening except the anomaly scan because she could not contemplate a termination, especially after a miscarriage.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN22
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The person doing her 20-week scan said it was a waste of money if people would not consider termination.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN01
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They had not fully appreciated what the 20-week scan was looking for.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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A friend said she would never have screening to look for problems but had in fact had scans.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN33
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They explained why they had the anomaly scan but not blood tests and why they felt differently about them.
Couple declined all early screening in two pregnancies, because they would not consider terminating an affected pregnancy, but did have 20-week anomaly scans. Currently pregnant.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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Looking back she felt more explanation of the purpose of the 20-week anomaly scan would have been helpful.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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The information about what the 20-week scan was looking for was very thorough.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN08
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The doctor in California who did her 20-week scan did not explain as well as her doctor in the UK.
Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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It would be sensible for sonographers at the 20-week scan to check the woman is properly informed and explain how they will communicate.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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She felt by the time of the 20-week scan it would be too late to consider ending the pregnancy.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN34
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She really enjoyed seeing the baby at the 20-week scan. She would have liked to choose which photograph to have.
Routine screening experiences. Healthy baby born 2002.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN26
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Staff seemed uncommunicative on the day of her 20-week scan, and she felt anxious something might have been missed.
Routine screening experiences, including nuchal scan.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN11
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The 20-week scan was a moving experience and the person doing the scan explained everything very helpfully.
Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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The 20-week scan was a lovely experience. She had an internal scan because of the baby's position, but did not mind.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN37
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Although he enjoyed the 20-week scan, it was buying baby clothes that made the pregnancy seem real.
Couple declined screening on principle in previous two and current pregnancy. Had a scan at around 20 weeks in two pregnancies for dating purposes only.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN25
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The 20-week scan was reassuring but not as exciting as she expected, and the pictures were unclear.
Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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Her first 20-week scan was professional but brief. The second time she had a specialist midwife who made it a happy experience.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN23
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At her 20-week scan in France she was given detailed information and explanation. She and her husband were very reassured.
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN28
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They had an anxious moment at the 20-week scan when the sonographer paused briefly. They felt he communicated honestly.
Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN13
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When staff spotted something unusual during the 20-week scan, she was very anxious and would have liked more immediate explanation.
Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late pregnancy.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN22
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It must be difficult for the person doing the scan to check something they are unsure about if the woman is watching the screen throughout.
Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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She did not really appreciate that the 20-week scan looks for particular conditions, despite reading the leaflets.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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She went for a routine repeat anomaly scan at 24-5 weeks in her second pregnancy, not expecting anything unusual would be found. She was alone with he
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN38
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At the 20-week scan, they valued the sonographer's honesty and kindness. She called the baby 'he', not 'it'.
Problems detected at 20-week scan. Amniocentesis confirmed Patau's syndrome. Couple decided to proceed with pregnancy. Baby born at 35 weeks and died after 3 minutes.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN04
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She felt anxious when staff talked to each other and not to her, when they spotted the baby's heart problems at her anomaly scan.
Hypoplastic left heart diagnosed after scan and amniocentesis at 25 weeks in second pregnancy. Decided to continue with the pregnancy. Son is now 2.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN18
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The lack of communication in the 20-week scan in her first pregnancy and having to have a repeat scan made her anxious.
Spina bifida detected at 20-week scan in first pregnancy - some family history of the condition. Couple decided to end the pregnancy. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN39
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Staff have to concentrate while doing scans, but some initial reassurance and a friendlier manner might help.
Hypoplastic left heart suspected at 19-week scan, confirmed by cardiac scan. Couple decided to end the pregnancy. Chose amniocentesis in next pregnancy (baby born 2002).
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN02
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It is understandable that staff have to concentrate during scans, but it makes you anxious when they go quiet.
1997 - nuchal scan and CVS confirmed Down's syndrome - decided to end the pregnancy. Has since had a healthy baby and is now pregnant again. Had CVS again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN35
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At the 20-week scan in her current pregnancy, the sonographer explained she would be silent, but the mother still felt anxious, especially after the e
Combined nuchal scan/blood test suggested high risk; early results ruled out trisomies but subsequently diagnosed a severe form of Turner's syndrome. Couple decided to end the pregnancy; now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN17
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She was worried in the waiting room between scans, and would rather have been told immediately that they suspected hydrocephalus.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN20
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She had to wait for a repeat 20-week scan in her current pregnancy when problems with the baby's digestive system were suspected, and she found the wa
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans have been reassuring.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN16
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The sonographer explained she would be silent at the 20-week scan in the woman's first pregnancy. She felt staff communicated bad news with honesty an
Anencephaly detected at 20-week scan in first pregnancy. Considered continuing the pregnancy but eventually decided to induce labour early. Second pregnancy miscarried. Now pregnant again.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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At the 20-week scan, the sonographer seemed bored. When he started to find problems she found it hard to grasp.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN36
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Insensitive communication in her 20-week scan made her panic. She could not believe her baby had so many problems.
Nuchal scan in first pregnancy gave low risk result, but anomaly scan at 21 weeks detected abnormalities, confirmed as Edwards' syndrome by amniocentesis. Couple decided to end the pregnancy.
Pregnancy & children
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Antenatal Screening
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Ending an affected pregnancy
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Interview AN17
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She would have liked a scan photo to remember the baby, but was too embarrassed to ask.
Hydrocephalus detected by 20-week scan and amniocentesis in first pregnancy. Felt the decision to end the pregnancy was rushed. Miscarriage and two healthy pregnancies since.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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One doctor at the specialist hospital told them their daughter's heart condition should have been detected at the 20-week scan.
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN03
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They would like to have their scan pictures reviewed by a specialist to know whether their daughter's heart condition could have been detected before
Daughter born November 2000 with congenital heart problems not detected by antenatal screening, diagnosed when the baby was 10 weeks old. Corrective surgery at 11 months and 2 years.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN46
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She was glad she did not know about her daughter's heart problem before birth, but in her second pregnancy she did want to know if there was a problem
Their daughter was diagnosed with pulmonary atresia, VSD & an overiding aorta. Treatment: closed heart surgery (shunt) at 11 days old, closed heart surgery (shunt) at 11 months old. Corrective open heart surgery at 2½ yrs old. Current medication: none. More of this interview can be seen on the DIPEX Congenital Heart Disease site as interview CHD30.
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