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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal translucency scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
Blood test screening
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
Subject index
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Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN01
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Having a friend who had recently had problems in pregnancy made her worried about screening.
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN34
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She trusted her doctor's advice that she should have screening.
Routine screening experiences. Healthy baby born 2002.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN27
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She did not feel she had much choice about screening and would have liked more information and explanation.
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN19
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Staff had informed her clearly about screening options but she knew other women who had been less well informed.
Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN05
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Even though her background meant she was well informed about healthcare, she would have liked more face-to-face discussion of screening.
4 months pregnant. Normal screening results. One scan in early pregnancy, no other scans planned. Alphafetoprotein results not yet received.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN09
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It is time-consuming for health professionals to inform people fully, especially about all the conditions being screened for.
Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Pregnancy & children
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Antenatal Screening
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Normal results or declining screening
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Interview AN21
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She had the combined nuchal scan and blood test privately, but found out only just in time that it was available.
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
Pregnancy & children
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Antenatal Screening
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Continuing with an affected pregnancy
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Interview AN30
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Meeting someone who had a baby with Down's syndrome made her re-think whether she should have amniocentesis, but her GP helped clarify her thoughts.
Down's syndrome suspected at nuchal scan. Couple declined amniocentesis and continued with the pregnancy. Further scans suggested heart problems (operated on successfully since baby's birth).
Pregnancy & children
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Antenatal Screening
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Baby's condition detected after birth
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Interview AN12
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Their daughter's Down's syndrome was not formally diagnosed for two weeks after birth, but the mother had already wondered about it.
Second child born with Down's syndrome after low risk nuchal scan results, and no problems detected at 20-week scan. Home birth. Daughter now aged two.
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