NHS Fetal Anomaly Screening Programme
fetalanomaly.screening.nhs.uk/
The NHS Fetal Anomaly Screening Programme aims to set standards and oversee the implementation of a good quality screening programme for all women in England.
NHS Infectious Diseases in Pregnancy Screening Programme
infectiousdiseases.screening.nhs.uk/
The infectious diseases in pregnancy screening programme offers screening to all pregnant women for four conditions: Hepatitis B, HIV, Rubella susceptibility and Syphilis.
NHS Sickle Cell & Thalassaemia Screening Programme
sct.screening.nhs.uk/
This website contains information about sickle cell and thalassaemia and other haemoglobin disorders, about the tests offered at different stages of life, and about how the NHS are developing screening and care.
ARC - Antenatal Results & Choices
www.arc-uk.org/
info@arc-uk.org
Tel: 0207 631 0285 Monday to Friday from 10am to 5.30pm
ARC offers information and support to parents who are: making decisions during the antenatal testing process, told that their unborn baby has an abnormality, having to make difficult decisions about continuing the pregnancy, having to make difficult decisions about ending the pregnancy.
NCT - National Childbirth Trust
www.nctpregnancyandbabycare.com
enquiries@national-childbirth-trust.co.uk
Tel: 0870 7703236
Offers support in pregnancy, childbirth and early parenthood and provides support to mothers suffering postnatal depression as well as information about NCT antenatal classes. Breast-feeding Line: 0870 444 8708 as well as information about NCT antenatal classes.
British Pregnancy Advisory Service (BPAS)
www.bpas.org
Tel: 08457 30 40 30
Has 34 consultation centres and 14 clinics throughout the UK where it offers pregnancy testing, emergency contraception, counselling, abortion care, sterilisation and vasectomy. Its website contains a range of information pages.
Choices for birth
www.choicesforbirth.org
Aims to provide women with the most recent evidence-based information relating to the pre-conception, pregnancy, birth and postnatal periods, that will assist them in making the right choices for themselves, their babies and families. The Choices for Birth website contains access to the MIDIRS Informed Choice resource, which is a comprehensive set of 25 titles which examine key decisions facing expectant mothers during pregnancy. There are two leaflets for each topic, one for pregnant women and one for health professionals. The women’s leaflets are designed to assist them in making informed choices, by providing the facts to help them make decisions that are right for them in their pregnancy. The professional leaflets aim to provide health care professionals with sound evidence upon which to base their practice.
Royal College of Obstetricians and Gynaecologists (RCOG)
www.rcog.org.uk
The RCOG encourages the study and advancement of the science and practice of obstetrics and gynaecology, through postgraduate medical education and training development, and the publication of clinical guidelines and reports on aspects of the specialty and service provision.
AIMS -Association for Improvements in the Maternity Services
www.aims.org.uk/
Tel: 0300 365 0663
Is working towards normal birth by providing independent support and information about maternity choices, raising awareness of current research on childbirth and related issues.
MIDIRS -Midwifery Information Service
www.midirs.orgTel Normal: 0800 581 009
9 Elmdale Road, Clifton, Bristol, BS8 1SL
Is an educational charity set up 'To be the central source of information relating to childbirth and to disseminate this information to midwives and others.'
APoGI - Accessible publishing of genetic information
www.chime.ucl.ac.uk/APoGI
apogi@chime.ucl.ac.uk
Provides information materials which are designed to help counsellors on haemoglobin disorders provide accurate counselling supported by written information to their clients.
PEGASUS - Professional Education for Genetic Assessment and Screening
www.pegasus.nhs.uk
PEGASUS online is for health professionals involved in antenatal and newborn screening. They aim to contribute to education and training in basic genetics for health professionals involved in screening.
Continuing Professional Development for Screening
cpd.screening.nhs.uk/screeningchoices
Screening Choices is a in-depth education programme commissioned by the UK NSC to meet the needs of a range of health professionals offering antenatal and newborn care. It was produced by the Cambridge based partnership of HSHS (formerly Homerton School of Health Studies) and Jill Rogers Associates.
Healthtalkonline - Ending a pregnancy for fetal abnormality
www.healthtalkonline.org/Ending_a_pregnancy_for_fetal_abnormality
info@healthtalkonline.org
We have interviewed 40 people (including some male partners) about their experiences of ending a pregnancy for fetal abnormality. To find out more about their experiences and the various issues that affected them, please visit the site. You may find some of the material distressing.
A Heartbreaking Choice
www.aheartbreakingchoice.com
An American website and support group to help parents cope with their feelings and emotions about screening and the process of ending a pregnancy. Discussion forum and support. No medical information provided.