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Pregnancy & children
Antenatal Screening
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Making decisions about screening :
Thinking about screening and what it is for
Special reasons for wanting screening
Reasons for not having some or all screening
Discussing screening choices with your partner
Attitudes to disability and termination
Information for making decisions
Experiences of screening :
Nuchal scan (low risk results)
Nuchal scan (being told something may be wrong)
Early dating scans
18-20 week scan (low risk results)
18-20 week scan (being told something may be wrong)
Blood test screening
Understanding screening test results
Having further tests and getting results :
Deciding whether to have further diagnostic tests
Having further tests and waiting for results
Getting diagnostic test results
Thoughts, discussions and info after diagnosis
Deciding to continue with the pregnancy :
Making the decision to continue with the pregnancy
What the rest of pregnancy and birth was like
Feelings about screening looking back
Deciding to end the pregnancy :
Making the decision to end the pregnancy
The experience of ending a pregnancy
Feelings and reflections afterwards
Views on screening & feelings in later pregnancies
When screening does not detect a condition :
Learning after birth that the baby has a condition
How it has affected parents' views about screening
Living with disabilities or a chronic condition :
Living with a child with a long term condition
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Antenatal Screening
People's stories
Normal results or declining screening
Interview AN24
:
Family history of Down's syndrome. Had amniocentesis in both pregnancies to rule out Down's syndrome, even though nuchal scan results were low risk.
Interview AN13
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Healthy pregnancy after 2 miscarriages; following nuchal scan results they considered amniocentesis and decided against. Baby born healthy, although mother had obstetric cholestasis in late ...
Interview AN23
:
After initial contact with NHS, decided to have antenatal care in France, including 3 scans with normal results. Baby born 2 months early in England.
Interview AN27
:
Healthy pregnancy, routine screening. Some blood test results came back abnormal. Levels of information and choice have been a concern.
Interview AN37
:
Couple declined screening on principle in previous two and current pregnancy. Had a scan at around 20 weeks in two pregnancies for dating purposes only.
Interview AN01
:
Normal first pregnancy, routine screening experiences. Had to spend time in hospital late in pregnancy for investigation of bleeding.
Interview AN11
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Normal first pregnancy; screening carried out in US, before return to UK when 6 months pregnant. Declined amniocentesis (offered as standard). Compares US and UK.
Interview AN05
:
4 months pregnant. Normal screening results. One scan in early pregnancy, no other scans planned. Alphafetoprotein results not yet received.
Interview AN08
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Normal first pregnancy, routine screening experiences. Private care throughout pregnancy.
Interview AN09
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Routine screening in two pregnancies - declined screening for Down's syndrome. Family history of hydrocephalus led to early prenatal counselling but no risk identified.
Interview AN14
:
Seven and a half months pregnant with twins conceived by IVF. Has had scans throughout pregnancy; nuchal translucency scan had to be repeated because of ...
Interview AN21
:
Normal first pregnancy; some early scanning after bleeding in first trimester. Screening includes nuchal translucency scan and blood testing.
Interview AN19
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Normal first pregnancy, routine screening experiences, including combined nuchal scan and blood test.
Interview AN34
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Routine screening experiences. Healthy baby born 2002.
Interview AN33
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Couple declined all early screening in two pregnancies, because they would not consider terminating an affected pregnancy, but did have 20-week anomaly scans. Currently ...
Interview AN20
:
Scan in first pregnancy detected blighted ovum. Three healthy pregnancies since . Now 8 months into fifth pregnancy. 20-week scan detected possible abnormalities; subsequent scans ...
Interview AN22
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Declined all screening except 20-week anomaly scan in two most recent pregnancies.
Interview AN25
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Two normal pregnancies. Nuchal scan not available locally, so had blood screening. Unable to have 20-week scan in first pregnancy because of staff shortages.
Interview AN26
:
Routine screening experiences, including nuchal scan.
Interview AN28
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Healthy pregnancy after an early miscarriage. Interviewee has a brother with severe learning disabilities and describes having genetic screening and counselling in early pregnancy.
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