Helen - Interview 23  

Helen - Interview 23

Age at Interview: 39
Sex: Female
Background: Helen is a single. Ethnic background / nationality: White British.

Brief outline:Helen had cystic fibrosis since childhood, which got worse as she got older. She had a lung and liver transplant in 2006, aged 34, and has been very well since then.

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Helen was given no information about her donor. She would love to know if the donor was male or female. It feels strange having someone’s organs inside her yet know nothing about them.

 



I was a little bit upset that I couldn’t get any information about the donor. This annoyed me because in different centres around the country, different people are given different information. Now I didn’t want their life story, but I wrote a letter to the family after the op, and it was really difficult to write it because I didn’t know whether that person was a man, woman, age, nothing. So it was very difficult to write that letter.

It seemed very impersonal just saying your family member or whatever. I couldn’t make it any more distinctive than that. And that was upsetting. But that is down to the [hospital name]. That’s their policy on it. But I kind of think, if I was donating, I’d like the person to know a little bit about me. I know it can cause lots of problems because you can get families who are following the recipient and making sure they don’t do anything to harm the organs. I know that.

But it would have been just helpful to have known a little bit of information about that person so I could have built up an idea of him or her in my head. I have no idea about the person at all, and that upsets me sometimes because I’ve got to live with their organs inside me for the rest of my life. And I know nothing about them. So that’s a bit of a sore point with me. I would have liked to have known a bit of information.

I think to the day I die I’ll be thinking, “Who was she? Who was he? Was he or she married, have they got children?” You know, just little questions like that. And I don’t see the harm in giving a little information. Because at the end of the day, as I said, they have consented to do this after their death. And also the recipient has put themselves through a huge operation in order to get those organs, so it’s a very big deal on both parts.
 

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