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Nerves & brain
Motor Neurone Disease
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Diagnosis :
First symptoms
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Possible causes of MND (including familial MND)
Telling others
Treatment/ interventions :
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PEGs, RIGs and ventilation
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Work/ career and money :
Work and career
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Living with MND :
Mobility, arm and leg weakness
Aids, equipment and adaptations
Personal care and care support
Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
Relationships and sex
Leisure, holidays and travel
Impact on family carers
Feelings about life and the future :
Philosophy, attitude to life and messages to others
Hospices, respite and thoughts about future care
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Motor Neurone Disease
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Nerves & brain
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Motor Neurone Disease
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Bulbar onset
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Sue - Interview 31
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She uses cranial-sacral therapy, acupuncture, and aromatherapy. She takes tomato juice for excess saliva, and echinacea and Bach Flower Remedies. [Voi
Sue was diagnosed with bulbar onset motor neurone disease less than a year ago (2006). She is now unable to speak and uses a laptop with voice software. Her arms and legs are still relatively strong.
Nerves & brain
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Motor Neurone Disease
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ALS- amyotrophic lateral sclerosis/MND aged 50-64
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Peter - Interview 38
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He takes noni juice and ginseng, and sour milk. He is careful about diet, but feels a little alcohol can be beneficial.
Peter was diagnosed three years ago (2004). Symptoms started in his arms and hands, and progressed to his legs. He now uses a wheelchair full-time.
Nerves & brain
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Motor Neurone Disease
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Carers
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Peter & Olivia - Interview 46
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They tried Chinese herbal remedies and acupuncture partly to rule out any other problems. It seemed to help her energy levels, but in the end her symp
Peter's daughter Olivia (aged 22) died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of MND remained uncertain, as aspects of her condition were unusual.
Nerves & brain
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Motor Neurone Disease
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ALS- amyotrophic lateral sclerosis/MND aged 50-64
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Slawomir - Interview 33
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He takes several supplements and herbal remedies, but also low-dose naltrexone, normally used to treat addiction. His neurologist will not prescribe i
Slawomir was diagnosed 3 months ago, 18 months after first noticing weakness in his leg. He wonders if he may in fact have Lyme Disease. He can still walk and drive.
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