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Nerves & brain
Motor Neurone Disease
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Diagnosis :
First symptoms
Path to diagnosis
Immediate reactions to diagnosis
Possible causes of MND (including familial MND)
Telling others
Treatment/ interventions :
Medication, trials and research
PEGs, RIGs and ventilation
Complementary therapies and alternative treatments
Physical therapy and exercise
Information and support :
Information needs
Support groups and meeting others
Work/ career and money :
Work and career
Finances and benefits
Living with MND :
Mobility, arm and leg weakness
Aids, equipment and adaptations
Personal care and care support
Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
Relationships and sex
Leisure, holidays and travel
Impact on family carers
Feelings about life and the future :
Philosophy, attitude to life and messages to others
Hospices, respite and thoughts about future care
Thoughts about death, dying and bereavement
Health and social care professionals :
Coordination of care
Messages for professionals
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Motor Neurone Disease
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Nerves & brain
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Motor Neurone Disease
>>
ALS- amyotrophic lateral sclerosis/MND aged 50-64
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Phil - Interview 28
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He and his wife have had a packed summer. She takes him fishing in his wheelchair, and helps him make toys for their grandsons in his workshop. It's i
Phil was diagnosed just over a year ago, after nearly 2 years of leg weakness. He is still able to walk at home but uses a wheelchair and scooter outdoors. He has some weakness in his right arm.
Nerves & brain
>>
Motor Neurone Disease
>>
ALS- amyotrophic lateral sclerosis/MND aged 50-64
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Stuart - Interview 05
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He has taken up writing, art, local history and running a community website. He's writing his life story for his grandchildren.
Stuart first noticed symptoms (legs shaking) almost 20 years ago. MND diagnosed 9 years ago (1997), after years of tests and investigations. Now uses a wheelchair.
Nerves & brain
>>
Motor Neurone Disease
>>
ALS- amyotrophic lateral sclerosis/MND aged 50-64
>>
Phil - Interview 28
>>
He doesn't dwell on the condition but it's an opportunity to sort his financial affairs and plan legacies for his grandchildren. He reflects back posi
Phil was diagnosed just over a year ago, after nearly 2 years of leg weakness. He is still able to walk at home but uses a wheelchair and scooter outdoors. He has some weakness in his right arm.
Nerves & brain
>>
Motor Neurone Disease
>>
ALS- amyotrophic lateral sclerosis/MND aged 50-64
>>
Phil - Interview 28
>>
Little things can still trigger great sadness, especially thinking about his grandchildren, but it was worse at the beginning. Learning to accept it h
Phil was diagnosed just over a year ago, after nearly 2 years of leg weakness. He is still able to walk at home but uses a wheelchair and scooter outdoors. He has some weakness in his right arm.
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