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Nerves & brain
Motor Neurone Disease
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Diagnosis :
First symptoms
Path to diagnosis
Immediate reactions to diagnosis
Possible causes of MND (including familial MND)
Telling others
Treatment/ interventions :
Medication, trials and research
PEGs, RIGs and ventilation
Complementary therapies and alternative treatments
Physical therapy and exercise
Information and support :
Information needs
Support groups and meeting others
Work/ career and money :
Work and career
Finances and benefits
Living with MND :
Mobility, arm and leg weakness
Aids, equipment and adaptations
Personal care and care support
Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
Relationships and sex
Leisure, holidays and travel
Impact on family carers
Feelings about life and the future :
Philosophy, attitude to life and messages to others
Hospices, respite and thoughts about future care
Thoughts about death, dying and bereavement
Health and social care professionals :
Coordination of care
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Motor Neurone Disease
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Nerves & brain
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Motor Neurone Disease
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Carers
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Ann & Barry - Interview 48
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She has been depressed about the loss of their future as a couple. She takes an antidepressant, but has also learnt to accept the things she can't cha
Ann's husband Barry was diagnosed with MND about 10 years ago (1997) at the age of 49, after two years of symptoms and tests. (Since identified as primary lateral sclerosis - PLS).
Nerves & brain
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Motor Neurone Disease
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Carers
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Dick - Interview 42
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Di's emotions became volatile a year before physical symptoms emerged and it caused some difficulties between them, so they saw a counsellor.
Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.
Nerves & brain
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Motor Neurone Disease
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Bulbar onset
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Sarah - Interview 21
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She became very depressed and tried hypnotherapy and counselling. The hospice medical director persuaded her to try an antidepressant, and gives conti
Sarah was diagnosed 7 years ago when 7 months pregnant with her second baby in 2000. Now she cannot use her arms or walk unaided, and her speech is affected, so she uses voice software to communicate.
Nerves & brain
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Motor Neurone Disease
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Carers
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Dick - Interview 42
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After Di's death he felt she was both present and absent. It has changed his beliefs about death. Friends and his stepson were supportive, and the hos
Dick was married to Di, who was diagnosed with MND two and a half years ago (2004). She died 6 months ago, aged 64.
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