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• Nerves & brain >> Motor Neurone Disease >> Bulbar onset >> Mike - Interview 23 >> They were offered stem cell treatment by a private clinic which has since closed. They'd do anything for a real cure, but exploiting desperate people

Mike was diagnosed with bulbar onset MND 2 years ago in 2005. He is now unable to speak, so was interviewed through his wife Gill. He uses a whiteboard and Lightwriter to communicate. He has a PEG (Percutaneous Endoscopic Gastrostomy).

• Nerves & brain >> Motor Neurone Disease >> Rarer forms - PMA (progressive muscular atrophy) >> Jim - Interview 18 >> He doesn't think riluzole makes much difference but continues to take it as he has no side-effects. He tried some other supplements but concluded they

Jim was diagnosed 2 years ago (2005) with Progressive Muscular Atrophy (PMA) form of MND. His legs and arms are affected but not speech.

• Nerves & brain >> Motor Neurone Disease >> ALS- amyotrophic lateral sclerosis/MND aged 50-64 >> Ken - Interview 15 >> He had some liver problems taking riluzole, especially when he was also taking minocycline to help with itchy skin.

Ken was diagnosed with amyotrophic lateral sclerosis (ALS) form of MND 5 years ago (2002). His arm muscles were affected first, followed by his leg muscles. His speech is not affected and his condition has progressed more slowly than he originally expected.

• Nerves & brain >> Motor Neurone Disease >> Rarer forms - PMA (progressive muscular atrophy) >> Roland - Interview 17 >> He is keen to volunteer for any research programmes. He had some problems getting riluzole prescribed.

Roland was diagnosed 7 years ago (1999) with Progressive Muscular Atrophy (PMA) form of MND. His hand muscles are affected but not his speech.

• Nerves & brain >> Motor Neurone Disease >> Carers >> Roger - Interview 41 >> His wife volunteered for trials and they researched the scientific evidence behind different treatments. It gave him hope, but his wife was less optim

Roger was married to Teresa, who was diagnosed with bulbar onset MND. She died a year ago, aged 64, less than six months after the diagnosis.