home
a-z of conditions
forums
news
about us
See all conditions
Nerves & brain
Motor Neurone Disease
Forum
Resources & Information
Subject index
Credits
Full list of topics
Diagnosis :
First symptoms
Path to diagnosis
Immediate reactions to diagnosis
Possible causes of MND (including familial MND)
Telling others
Treatment/ interventions :
Medication, trials and research
PEGs, RIGs and ventilation
Complementary therapies and alternative treatments
Physical therapy and exercise
Information and support :
Information needs
Support Groups and meeting others
Work/ career and money :
Work and career
Finances and benefits
Living with MND :
Mobility, arm and leg weakness
Aids, equipment and adaptations
Personal care and care support
Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
Relationships and sex
Leisure, holidays and travel
Impact on family carers
Feelings about life and the future :
Philosophy, attitude to life and messages to other
Hospices, respite and thoughts about future care
Thoughts about death, dying and bereavement
Health and social care professionals :
Coordination of care
Messages for professionals
Search the whole site
Search in this condition
Motor Neurone Disease
Subject index
Clip
Nerves & brain
>>
Motor Neurone Disease
>>
Carers
>>
Ann & Barry - Interview 48
>>
She has been depressed about the loss of their future as a couple. She takes an antidepressant, but has also learnt to accept the things she can't cha
Ann's husband Barry was diagnosed with MND about 10 years ago (1997) at the age of 49, after two years of symptoms and tests. (Since identified as primary lateral sclerosis - PLS).
Nerves & brain
>>
Motor Neurone Disease
>>
ALS- amyotrophic lateral sclerosis/MND aged 20-49
>>
Kim - Interview 10
>>
She resisted taking an antidepressant for emotional lability but now she's glad she does. She enjoyed the laughter but not the crying.
Kim was diagnosed with MND (ALS) about a year ago (2005). Now unable to walk she needs help with most daily tasks, but is still working as an occupational therapist and able to drive. Her speech is not affected.
Nerves & brain
>>
Motor Neurone Disease
>>
Rarer forms - PLS (primary lateral sclerosis)
>>
Hal - Interview 26
>>
He found it difficult to control his emotions. He was worried about becoming reliant on an antidepressant but it has made him calmer and restored his
Hal was diagnosed with MND nearly three years ago in 2004. Diagnosis revised to primary lateral sclerosis (PLS) a year ago. His speech is affected, but mobility is still good.
Nerves & brain
>>
Motor Neurone Disease
>>
Bulbar onset
>>
Sarah - Interview 21
>>
She became very depressed and tried hypnotherapy and counselling. The hospice medical director persuaded her to try an antidepressant, and gives conti
Sarah was diagnosed 7 years ago when 7 months pregnant with her second baby in 2000. Now she cannot use her arms or walk unaided, and her speech is affected, so she uses voice software to communicate.
Nerves & brain
>>
Motor Neurone Disease
>>
Rarer forms - familial/inherited
>>
Ken - Interview 34
>>
Her husband's emotional reactions have become quite different, and he laughs and cries unexpectedly. He does not want to take medication. [Ken is unab
Ken was diagnosed with rare inherited (familial) form of MND less than a year ago (2006). He has limited arm and leg movement, has a PEG and uses a Lightwriter to speak, but carried on working until a month ago. Interviewed through his wife Chris.
Nerves & brain
>>
Motor Neurone Disease
>>
Rarer forms - familial/inherited
>>
Liz - Interview 22
>>
She is determined to keep going for her children's sake, but she has been depressed in the past. Taking an antidepressant helped control both depressi
Liz was diagnosed with rare inherited (familial) form of MND 8 years ago (1998). Sixth member of her family to be diagnosed. Has weakness in her arms and legs, and some speech difficulties. Has a PEG but does not use it yet.
Mail to a friend