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Nerves & brain
Motor Neurone Disease
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Diagnosis :
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Living with MND :
Mobility, arm and leg weakness
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Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
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Impact on family carers
Feelings about life and the future :
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Motor Neurone Disease
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Nerves & brain
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Motor Neurone Disease
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Bulbar onset
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Sue - Interview 31
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She uses cranial-sacral therapy, acupuncture, and aromatherapy. She takes tomato juice for excess saliva, and echinacea and Bach Flower Remedies. [Voi
Sue was diagnosed with bulbar onset motor neurone disease less than a year ago (2006). She is now unable to speak and uses a laptop with voice software. Her arms and legs are still relatively strong.
Nerves & brain
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Motor Neurone Disease
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Carers
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Peter & Olivia - Interview 46
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They tried Chinese herbal remedies and acupuncture partly to rule out any other problems. It seemed to help her energy levels, but in the end her symp
Peter's daughter Olivia (aged 22) died within a year of developing pain and weakness in her leg, in late 2006. Diagnosis of MND remained uncertain, as aspects of her condition were unusual.
Nerves & brain
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Motor Neurone Disease
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Rarer forms - familial/inherited
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Liz - Interview 39
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Aromatherapy helps her breathing. She likes massage and has tried acupuncture. Meditation makes her feel calmer and stronger when she feels down.
Liz was diagnosed with inherited form of MND in 2004. (Her father and uncle both had MND). Weakness in her legs progressed to her arms; she is now in a wheelchair. Her speech is unaffected.
Nerves & brain
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Motor Neurone Disease
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Rarer forms - PMA (progressive muscular atrophy)
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Paul - Interview 09
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Acupuncture relaxed him, but he saw no longer term benefits and it cost too much. It made electrical nerve tests seem easy by comparison.
Paul's diagnosis of progressive muscular atrophy was confirmed 2 years ago (2004) after several years of leg pain and weakness. Now unable to walk and he has limited arm movement. Uses a ventilator, but his speech is not affected. He worked until 6 months ago.
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