Please click on the link below for our list of national health information and support sources.

www.healthtalkonline.org/Page/National_Health_Information

www.mndassociation.org
Tel: 08457 626262 Monday to Friday 9.00am to 10.30pm
Email: enquiries@mndassociation.org

mndconnect@mndassociation.org
MND Association The MND Association is a national charity (covering England, Wales and Northern Ireland) working to help people with MND secure the care and support they need, while promoting research into causes, treatments and a cure. The MND Association also runs a telephone and email helpline, called MND Connect. MND Connect offers advice, practical and emotional support and directing to other services and agencies. The service is for people living with MND, carers, family members, Health and Social Care Professionals and Association staff and volunteers who directly support people with MND.

www.scotmnd.org.uk
info@scotmnd.co.uk
Tel: 0141 945 1077
76 Firhill Road, Glasgow, G20 7BA
The Scottish MND Association provides similar support to people in Scotland living with MND.

www.mndassociation.org
More extensive lists of links and useful organisation can be found through the MND Association.

www.alsmndalliance.org/
alliance@alsmndalliance.org
The International Alliance is an umbrella organisation for MND/ALS support groups and associations around the world. From its 'Directory' page you can find links to many national MND Associations.

www.abilitynet.org.uk/
enquiries@abilitynet.org.uk
Tel: 0800 269 545
Ability Net is a national charity which helps adults and children with disabilities use computers and the internet by adapting and adjusting their technology. Ability Net works in partnership with the MND Association.

www.ukconnect.org
Tel: 020 7367 0840
The charity Connect (www.ukconnect.org) offers advice, training and resources to help people with speech difficulties to communicate. Their main focus is people whose communication problems are caused by stroke, but some of their resources are also useful for people living with other conditions.

www.motability.co.uk/
Tel: 0845 456 4566 (8.30am till 5.30pm Monday to Friday)
Motability is a national charity, set up on the initiative of the Government in 1977, to assist disabled people with their mobility needs. It oversees the Motability Scheme which enables disabled people to obtain a car, powered wheelchair or scooter simply by using their government-funded mobility allowances.

www.mobility-centres.org.uk/
mobility@rcht.cornwall.nhs.uk
Tel: 0800 559 3636
A network of independent organisations covering England, Scotland, Wales and Northern Ireland, who offer information, advice and assessment to individuals who have a medical condition or are recovering from an accident or injury which may affect their ability to drive, or to get in or out of their car. (Open between 9.00 and 5.00pm Mondays to Fridays).

www.remap.org.uk/
Tel: 0845 130 0456
Remap is a national registered charity that has, for 40 years, provided one-off technical aids which help disabled people of all ages to enjoy a better lifestyle. Every aid is given free of charge to the user. Remap operates through a network of 1,500 volunteers. The professional engineers, technicians, and craftspeople - along with medical and paramedical staff from community services and hospitals - all belong to approximately 100 panels (groups) linked to regions across the UK, with Scotland and the Isle of Man operating separately.

www.speakability.org.uk/
speakability@speakability.org.uk
Tel: 080 8808 9572 Monday to Friday 10am - 4pm, answerphone at all other times.
Speakability supports people with speech and communication difficulties.

www.youtube.com/watch?v=VHxa4G7HATk
Personal reflections on video from Henry Marcuzzi, who wanted to take part in an interview for the  website, but felt unable to at the time as it was too soon for him emotionally.

www.Realtimehealth.com/conditions/motorneuronedisease
Real Time Health is an Australian website with health information and personal experiences of people living with MND (as well as a range of other conditions). Membership is free.

www.build-uk.net
p.wicks@iop.kcl.ac.uk
Tel: 020 7848 0715
Is an email discussion forum and self-help group for people living with MND.

www.patientslikeme.com
support@patientslikeme.com
Is an online community where people share information about their symptoms, treatments and outcomes. (The Patients Like Me site is gradually being expanded to include communities for people living with other conditions, but the ALS/MND was the first community to be set up).

www.alsforums.com/
info@alsforums.com
Online support community for people with ALS/MND and their caregivers.

www.crusebereavementcare.org.uk
helpline@cruse.org.uk
Tel: 0844 477 9400
Cruse Bereavement Care exists to promote the well being of bereaved people enabling them to understand their grief and cope with their loss.

www.direct.gov.uk/en/DisabledPeople/index.htm
Advice and information on benefits and support in staying at work.