People's Stories - Patients, family and professional experience of health and illness... all in one place : Healthtalkonline

Full list of topics

Diagnosis :
First symptoms
Path to diagnosis
Immediate reactions to diagnosis
Possible causes of MND (including familial MND)
Telling others

Treatment/ interventions :
Medication, trials and research
PEGs, RIGs and ventilation
Complementary therapies and alternative treatments
Physical therapy and exercise

Information and support :
Information needs
Support groups and meeting others

Work/ career and money :
Work and career
Finances and benefits

Living with MND :
Mobility, arm and leg weakness
Aids, equipment and adaptations
Personal care and care support
Speech and communication
Eating, swallowing and breathing
Tiredness, pain and discomfort
Forgetfulness and thinking
Emotional lability, depression and low mood
Relationships and sex
Leisure, holidays and travel
Impact on family carers

Feelings about life and the future :
Philosophy, attitude to life and messages to others
Hospices, respite and thoughts about future care
Thoughts about death, dying and bereavement

Health and social care professionals :
Coordination of care
Messages for professionals

Search the whole site
Search in this condition

Motor Neurone Disease

People's stories

ALS- amyotrophic lateral sclerosis/MND aged 20-49

ALS- amyotrophic lateral sclerosis/MND aged 50-64

ALS- amyotrophic lateral sclerosis/MND aged 65+

Rarer forms - PMA (progressive muscular atrophy)

Rarer forms - PLS (primary lateral sclerosis)

Rarer forms - familial/inherited

Jonathan Miller - Motor Neurone

How Healthtalkonline works, Alan and Elizabeth's story

MND

Support our work

Useful Links

National Health Information
More....

Tell us your story

You can help support others by sharing your own experiences through healthtalkonline.

Mail to a friend

Send

Site map / Contact us / Terms of use / Privacy policy / Disclaimer / Help

DIPEx is a registered charity No. 1087019 and a company limited by guarantee No. 417886

Copyright © DIPEx 2008. All rights reserved. Website by Thinking Fish.