Sandy - Interview 36  

Sandy - Interview 36

Age at Interview: 59
Sex: Male
Age at Diagnosis: 55
Background: Sandy is a retired Royal Navy sub-mariner, married with 2 adult children. Ethnic background/nationality: White British.

Brief outline:Sandy was diagnosed 5 years ago (2002) after noticing weakness in one arm. His arms have been worst affected, and now his speech and neck muscles are deteriorating, but he can still walk well.

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He can still go on walks but not as long as he used to. He still goes to his local pub sometimes and has a personal bar stool reserved for him.

 



Well, there's not much [laughs] I can still do that I used to do. I had a very active life. I've been known to walk over forty miles in a day. I can now walk maybe three or four as long as I get plenty of breaks. But I do have to wear a neck, neck brace for that. And at the moment we're trying to work out how best that should be worn. I miss - I had a very active social life as well, and that has obviously been curtailed. I do go to the pub now and again and I'm well looked after by my friends and staff. And I do go to the golf club, where I'm looked after. But going out for dinner and things isn't as, isn't as fun as it used to be. We still do it, but only on a rare occasion.

You mentioned in the piece that you write that you need to sit down to drink when you're in the pub. Can you tell me about that?

Well, it, it got to the stage where I couldn't stand and lift a, a pint of beer. I had to sit. And so one of the local worthies in the village gave me his stool. He's in there, I have to say, a lot more than I am. And it gets to the stage now when I walk in that whoever's sitting on that stool is asked if they would kindly get up and allow me to sit there. It's become a bit of a joke, but that's good, I enjoy it. And if anybody took offence, I wouldn't mind, I'd go and sit somewhere else. But, no, it's accepted, the staff are good, yeah.

Jonathan Miller - Motor Neurone
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