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Motor Neurone DiseaseArrow
Rarer forms - PMA (progressive muscular atrophy)
Pauline - Interview 30  

Pauline - Interview 30

Age at Interview: 54
Sex: Female
Age at Diagnosis: 52
Background: Pauline is a freelance market research consultant in the pharmaceutical industry, married with 2 children, aged 24 and 22. Ethnic background/nationality: White British.
Brief outline:Pauline was diagnosed with PMA (progressive muscular atrophy) about 2 years ago (2005), after several years of leg weakness. She cannot walk far and uses a wheelchair, but is still able to work full-time.

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Her neurophysiotherapist recommended toe stretches to stop her toes curling over. A chiropodist friend told her pads under her toes would help.

 



But a lot of it is networking. You speak to other people. I've got a friend who has qualified as a chiropodist as a sort of second career, and I was talking to her about the problem with your feet is that your toes claw over. Well, that's very uncomfortable in shoes, and of course it doesn't help you to walk very well either, even though you can't walk very well in the first place. So I got some information from my neurophysio about doing toe stretches, the same as you'd stretch any other ligament on your body. So you do an arm stretch when you've done arm exercise, you hamstring stretch, you do toe stretches to stop the ligaments from shortening. But also you can buy these little pad things that go under your toes, which are made of chamois leather or silicon, which push, splay your toes out a bit, stop them curling over so much. Well, I wouldn't have found out about that unless I'd spoken to this friend. So all that sort of information really should be available to other people. So I think that sort of stuff could go on a website.
Jonathan Miller - Motor Neurone
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