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Motor Neurone DiseaseArrow
Rarer forms - PLS (primary lateral sclerosis)
Hal - Interview 26  

Hal - Interview 26

Age at Interview: 60
Sex: Male
Age at Diagnosis: 57
Background: Hal is a retired software company managing director, married with 2 adult children. Ethnic background/nationality: White British.
Brief outline:Hal was diagnosed with MND nearly three years ago in 2004. Diagnosis revised to primary lateral sclerosis (PLS) a year ago. His speech is affected, but mobility is still good.

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They met a social worker on the day he was diagnosed. She organised claims for Disability Living Allowance and Carer's Allowance without them even realising.

 



I mentioned earlier that one of the people we saw at that initial visit was a social worker, who at the time got us to sign two forms. When we came away, we hadn't got a clue what we'd signed. And in actual fact the consultant that we saw had been instrumental in getting MND recognised as a… illness which qualified for Disability Living Allowance. And that was one of the forms I signed, and my wife actually signed a form for a Carer's Allowance. So yes, we have made benefit from what is available to us. Other benefits that have become available is we get a free pass on the M6 Toll Road [laughs], which is great.

Wife off camera: And your car tax.

And road fund licence.

Oh right.

Yeah, that is free.
Jonathan Miller - Motor Neurone
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