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Motor Neurone DiseaseArrow
Bulbar onset
Mike - Interview 23  

Mike - Interview 23

Age at Interview: 54
Sex: Male
Age at Diagnosis: 52
Background: Mike (aged 54) and Gill (aged 49) are a married couple with 3 adult children. Mike retired as a Fire Master. Gill is a management consultant. Ethnic background/nationality: White British.
Brief outline:Mike was diagnosed with bulbar onset MND 2 years ago in 2005. He is now unable to speak, so was interviewed through his wife Gill. He uses a whiteboard and Lightwriter to communicate. He has a PEG (Percutaneous Endoscopic Gastrostomy).

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At the moment they don't even want to discuss a Living Will. They're just trying to manage and carry on living normally. [Mike is unable to speak].

 



We do know about Living Wills and about, you know, right to die and all of this sort of stuff. But it's not something that we discuss. It's not something that we feel, I don't think, that we need to discuss. Because we're not even placing ourselves there, you know. At this moment in time, I think the place where we're at is we're just trying to manage and be normal. And we don't want to even go there, do we? We're not - we've done other stuff, you know. We've obviously put wills in place for other stuff, which is natural anyway for people. But the Living Will, no, we've not talked about that, have we?
Jonathan Miller - Motor Neurone
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