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Motor Neurone DiseaseArrow
Rarer forms - PLS (primary lateral sclerosis)
James - Interview 16  

James - Interview 16

Age at Interview: 76
Sex: Male
Age at Diagnosis: 61
Background: James is a retired carpenter/joiner, widowed. Ethnic background/nationality: White British.
Brief outline:James was diagnosed with Primary Lateral Sclerosis (PLS) 15 years ago (1991). His wife also had MND and died 3 years ago, 2 years after her diagnosis.

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He's had a good life and he'd like his doctors to be able to help him end it quickly when the time comes. Many people who oppose assisted dying have no experience of MND.

 



I mean I've had a good life and although I've had some bad things have happened like my parents dying and that sort of thing but for the most part I've had a very happy life and I'm grateful for it. And the man said three score years and ten and I've had six years bonus. So all we can all ask for is an easy get out at the end of the day. I would very much like if I was sensible enough if I could say to my doctor or consultant, “Switch me off” and he was able to do it because you wouldn't let a dog live the way some people do and when you hear these people say it's not ethical and one thing and another, usually they haven't got MND and I think that that should be everybody's basic right to say, “I've had enough”. I'm, I'm very strong on that. Everybody wouldn't agree but I think if those who desire that then it should be available.
Jonathan Miller - Motor Neurone
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