Marcelin - Interview 37  

Marcelin - Interview 37

Age at Interview: 55
Sex: Male
Age at Diagnosis: 51
Background: Marcelin is a research and technology systems engineer, divorced, with 4 children aged 27, 20, 16 and 7. Ethnic background/nationality: African.

Brief outline:Marcelin was diagnosed over three years ago (in 2003), after several years of weakness in his arms, and later his legs. He now uses a wheelchair. His speech is unaffected. He continues to work full-time. (Partner Tess also interviewed, MND44).

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Religion is not important to him, but he believes in some kind of entity. He sees illness and death as important parts of nature and he is not afraid.

 



Is religion important to you?

No, not important. What is important is [cough] what I said - I'm a scientist. I've put the questions along, very much, and I reach a point where there are things that I cannot explain. So in my viewpoint, religions are just interpretations. So I'm very free about that. People can interpret the way they want. I'm tolerant to every interpretation. But I don't need religion. But I reach a point where I committed. For me I'm committed to believe there's an entity. So I don't call it God, because people can call it God - so there are not - a lot of people are Christian, believe in what they call God. They idolise their way. No problem. What I call an entity is more complicated than that. It's things which are both spiritual and physical etc. It's just the fact that I am committed to believe that there is one, because I cannot explain things like energy, and plus and minus, content and not content etc. So this helps me to have a very strong spiritual position, by the fact that I'm not afraid of death. I have, I'm not at all polluted by things like heaven or hell, all these kind of things. So I just believe that there is a wonderful world, and a wonderful machine that we are, and all the wonderful machines of our loving life, whether they're animals or, or humans or plants. And this is the sign that - for me anyway - diseases are part of, of, of nature. So in fact I came to this perspective very slowly by thinking that there is a need for having diseases, because that's the way nature regulates the, the species and regulates everything. And nature, for me, in my conception, is the armed arm of the entity. So if there's an entity somewhere, it's using nature to regulate this thing. And from that point on I'm fine. But still it doesn't mean that you are, or you cannot fight or you cannot hit back. It's nature given to you as well.

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