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She feels that her hand is unpleasantly cold so she wears a glove to stop it becoming painful.
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And you wear a glove now, is that because it's numb?
Pardon?
You're wearing a glove on your hand?
It's because it's numb and cold. Never really gets warmed up. Though if you feel it, it will be quite normal but I find it's cold. Mm hmm.
And so do you wear the glove all the time?
I wear this one glove all the time. It, I don't, this one's alright, you see. And when I don't wear it… if it gets cold, it gets sore. So I just wear it, you know. Do my finger exercises and… it hasn't really changed very much for quite some time. It still keeps the same pace but I don't know whether that will come back or not but I certainly do my exercises and hoping it will come back, you know. But it could be worse. I mean, that's not a great disablement. It's just I can do my finger exercises. Mm hmm. |
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Found catheterisation a nuisance because she had to learn to attend to it each morning but she got used to it and it was taken out eventually.
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So while I was in, in the care home, I had a… what do you call them? Peg?
Yes.
Yeah. Because I had to be attended to every day.
Oh, was it a catheter?
A catheter. Mm hmm. That's right. I had a catheter. That was another nuisance [laughs]. Oh dear. However, I had to attend to it every morning, you know. So I got quite good at that. However, that finished but they, they left the, all the equipment in, just in case it came back again and that was a nuisance.
With the catheter, can you explain, was it, when you had it put in, what was it like having it put in?
Quite painful actually. But it was a terrible nuisance having to attend to it all the time, you know. However, I got over it.
And when they took it out, did they just take it out or did they gradually take it from you?
No. No. They just took it out. And that was that. I went back to a normal diet and that.
And did they give you any advice when you stopped using the catheter? Sometimes people are told to drink plenty of water?
No, I can't remember having told, been told that, no. But this is quite a performance every morning, you know, with this catheter. But… however, I was quite determined to do everything I was told to do, so as I would get better quick [laughs]. But it wasn't quick, it was a lengthy business. |
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She describes having a PEG tube inserted into her stomach but says it wasn't needed in the end.
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A peg and… they didn't feed me through that but they had set it up so as they could feed me through that if it was necessary… So thank God, it wasn't because I didn't fancy the idea, you know.
So they never, you never had to be fed through that?
No, never. And I had it on for ages and ages and ages and then when I left the hospital… just had to come home… No, wait a minute I went to a nursing home and… I still had to have pureed food, you know, but it was a long, long time before I got, was able to eat anything solid, you know. And so I had this thing in here all the time. It's only about 2 weeks ago since I actually visited the hospital that I, this had been put in about… 6 months ago and then… I was… I was sent home and then I had to come back to have this thing sorted, you see and it was quite an operation it was really. Not very nice and they left me with precautionary tube in, you know. Well, it was in for about 6 months and never used because I got my voice back… and, so in the end, I, the last appointment I had at the hospital, I said, “I want this out” and it was [laughs] don't know if you're interested but [laughs] he was a Greek doctor… and I, I said, “I want this out”, “Oh”, you see, he was horrified, you know. He said, “I've never done that before”. I said, “Well, I want it out because it's doing nothing and it's, it's just having, making it, things awkward for me” so there was two nurses standing by and they said, “We'll take it out. We've done it before”. So they just…
Took it out?
Took it out. Mm hmm.
Do you remember having it put in? What was it like having it put in?
Well, it wasn't very nice because they had, they had to make a slit to push the tube in, you know, but it didn't bleed very much. It was really… but it was a terrible pest. However, I was determined to do all the things I was told to do.
But a relief to get it out?
Yes. So it's out now. Not long. It's only a few weeks since it came out and it's great. |
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She still likes to do some of the cleaning but breaks it up now so she doesn't get so tired.
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How about maybe doing things for yourself about the house? How did you find that?
Oh well, I do, I do. Uh huh. I do the dusting and I mop the kitchen floor, which isn't really… it's not very hard, you know, with a mop and a pail, one of the mop pails and I do wee jobs and keep the dusting under control and, but [the home help] does the rest.
Is there anything that you've found difficult to do since your stroke?
I tire easily… You know. I don't like doing too much [laughs] at the one time, I sort of… spread it out, you know. [Ha Ha]. |
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When she came home she missed the company and the support of the hospital staff.
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How was it when you came home?
Not very nice. Not very happy for a while… because I, everything had been so wonderful in that hospital, I had such good care and then I came home and you're relying on the social work department to send you a helper and however it's turned out that I'm very happy, excuse me, I'm very lucky because I've got a carer who comes in four times a week, a day sorry [laughs], four times a day. So I'm very lucky.
But now I've been back home for what, two or three… two or three months, I can't remember which, I'm OK, I'm settled in fine, you know. I wasn't looking forward to come home because I wasn't, I live on my own, you see. So, however, aye, I like the company but. |
