Ralph - Interview 60  

Ralph - Interview 60

Age at Interview: 69
Sex: Male
Age at Diagnosis: 66
Background: Ralph is 69, retired, and resides at home on his own. He experienced his stroke three years prior at age 66. His ethnic background is White British.

Brief outline:One morning Ralph awoke to feelings of pins and needles in his arm and leg. Recognising that there was a problem, he immediately called NHS Direct. Ralph was happy with the quick response, but felt that things fell apart afterward. Since he lived alone and had no social support network (i.e., family to call), he discharged himself from the hospital.

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Although 999 responded quickly, Ralph experienced many delays afterward.

 



 

So the ambulance crew came very quickly, within about 12 minutes I think. And they were in a hell of a hurry and they whisked me off to the hospital, wouldn’t even let me stop for a toilet (bag) which subsequently became a bit of a problem. I was just in the clothes that I stood up in, that was it. But then I got into the emergency (unit) I was put on a trolley and nobody looked at me, not even in my direction for literally hours until I eventually saw a doctor and she said, “We’ll book you in for a scan about three o’clock tomorrow.”
 
So what was all this urgency about? What’s the F.A.S.T. campaign about? You know. So that was the beginning of a rather unpleasant experience.
 
So continue on with your hospital experience.
 
Well I had my scan and somebody said, “You’ve had a stroke.” I said, “Great. I know I’ve had a stroke, the girl on the end of the telephone line says I’ve had a stroke. The paramedics say I’ve had a stroke. Thank you very much, I’ve had a stroke. So, what do we do now?” I was put on a general ward for about a week and then I was finally moved to a stroke ward, which was absolutely no different except that there were some other stroke patients there.
 
It was about a week before I had any kind of treatment, even medication. The likely scenario was never discussed. I had sporadic and brief physio sessions, but given no exercises or warnings about the effects of prolonged bed rest, etc*.
 
I never got off the ward until I was transferred to the stroke rehabilitation unit... so called. (In) which I had no rehabilitation whatsoever [sighs]. I’m sorry to be negative but there’s very little positive to cling onto. For instance, just simple things like, I mean, for a start I was kept in bed, flat on my back. And if I wanted to go to the toilet or have a wash or anything I had to have somebody wheel me there. I mean, after a while I got to the point where at least I could go to the bathroom on my own, if they would leave me alone. I had to appeal to the consultant and say, “Look, I can, I’m OK to do this on my own. And he persuaded them to let me do it, because I found it difficult doing things with people standing around watching me. So it was very unpleasant and there weren’t even practical considerations like, I mean, I had bladder and bowel loss of control (as you do). I was, as far as you can possibly get from the bathroom, in an open ward. I mean, surely, it doesn’t take a great mind to say, “Maybe we can move him down to (be), near the bathroom. Or maybe we can put him in a side room where, where he can take himself to the toilet.”
 
*text added after the interview by Ralph.

 

Jonathan Miller - Stroke
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