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Parkinson's disease
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Living with Parkinson's disease :
Redefining yourself
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Parkinson's disease
Subject index
Clip
Nerves & brain
>>
Parkinson's disease
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3-4 years
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Peter - Interview 11
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Peter describes why he became enthusiastic supporter of the local branch of the Parkinson’s disease society.
Peter was diagnosed six years ago. He experiences tremor, freezing and rigidity and considerable problems sleeping at night. He takes slow release Sinemet and Amitriptyline.
Nerves & brain
>>
Parkinson's disease
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3-4 years
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Gaynor - Interview 15
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Gaynor joined her local group with trepidation, now she is fully committed to its activities.
Gaynor was diagnosed 4 and half years ago. She takes Mirapexin. Fatigue, sleep disturbance and stiffness are the main symptoms she experiences.
Nerves & brain
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Parkinson's disease
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3-4 years
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Nicolas - Interview 23
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Nicolas made some contacts through the PDS and feels that you can learn more from other people with the illness than from anywhere else.
Diagnosed 4 years ago, Nicolas now takes a low dose of Mirapexin. He works full time. He experiences stiffness, tiredness and difficulties with walking and handwriting.
Nerves & brain
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Parkinson's disease
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2 years or under
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Ann - Interview 19
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A 6-week course gave Ann a lot of practical help but she doesn’t feel ready to join a PD group.
Diagnosed three years ago, Ann has tremor in her right hand. The first year after diagnosis was very difficult, but since taking Mirapexin, she feels more able to cope.
Nerves & brain
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Parkinson's disease
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8-12 years
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Sharon - Interview 31
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Sharon had gone to a support group but decided that though she was normally quite sociable this was a nightmare.
Forced by her Parkinsons symptoms to retire from a career she loved as a teacher Sharon turned things round by becoming a business woman creating the very successful Cake Bake Company.
Nerves & brain
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Parkinson's disease
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DBS
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Elisabet - Interview 08
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Elisabet was shocked to see people who had become dependent on someone else and preferred to remain in denial about her future.
Elisabet was diagnosed in 1990. In 2006, she had deep brain stimulation which was successful and has improved her symptoms considerably.
Nerves & brain
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Parkinson's disease
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5-7 years
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Fiona and John - Interview 09
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Fiona and her husband had not wanted to join a group but he met someone on a charity stall and had such a useful conversation that he changed his mind
Fiona’s husband was diagnosed in 2003 at the age of 42 with early onset Parkinson’s Disease. He has continued to work full time.
Nerves & brain
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Parkinson's disease
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2 years or under
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Kevin - Interview 16
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Kevin resisted joining the local group because he thought it would be full of old people. He found he couldn’t tell who were the carers and who had PD
Kevin was diagnosed 2 years ago. Although he still experiences stiffness, particularly in his shoulder and neck, most of his symptoms were managed well by Ropinirole but it caused nausea and has os now on Rogitotine 4mg vvpatches.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
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Keith - Interview 14
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Keith admits that part of his interest in other people with PD is to make comparisons with his own condition and to try predict how things will go for
Keith’s symptoms have progressed slowly since he was diagnosed in 2004. His symptoms are tremor in his left hand, slowness and fatique. He is currently taking Madopar.
Topic
Nerves & brain
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Parkinson's disease
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Support and support groups
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Support and support groups
Support and support groups
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Parkinson's disease
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Support and support groups
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Support and support groups
Support and support groups
Nerves & brain
>>
Parkinson's disease
>>
2 years or under
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Penny - Interview 17
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Penny, diagnosed when she was 51, did not feel ready to see how Parkinson’s disease could affect someone of her age.
Although she was advised not to mention her newly diagnosed Parkinson’s disease when she had to change her job she has found that disclosure was necessary. As a divorced woman she can’t help worrying about who will care for her in future if her condition deteriorates.
Nerves & brain
>>
Parkinson's disease
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5-7 years
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Rex - Interview 04
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Rex found something very reassuring about being with people who understood what PD was about.
Rex was diagnosed six years ago. His main symptom now is tremor in his right hand and he is still active and mobile.
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