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Nerves & brain
Parkinson's disease
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Discovery :
Early symptoms
Path to diagnosis
Getting the diagnosis
Telling others
Information
Causes of Parkinson’s disease
Treatment :
Levodopa
Dopamine receptor agonists
Managing medication
The operation: Deep Brain Stimulation
Professional help
Self help
Parkinson's symptoms :
Tremor, loss of control
Movement
Embarrassing symptoms
Mental disturbances
Living with Parkinson's disease :
Redefining yourself
Keeping going
Work, career, benefits
Driving and journeys
Support and support groups
Parkinson’s UK and Parkinson’s disease nurses
Now and the future
Caring, care and carers
Advice to others
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Parkinson's disease
Subject index
Clip
Nerves & brain
>>
Parkinson's disease
>>
Over 12 years
>>
Tom - Interview 06
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Tom thought that because some pink tablets relieved his symptoms this meant he was OK. He didn’t realise the test had revealed his diagnosis.
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.
Nerves & brain
>>
Parkinson's disease
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5-7 years
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Wendy - Interview 07
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Wendy had had symptoms for five years before she saw a neurologist who said she had to wait another year for him to be sure of the diagnosis.
Wendy was diagnosed in 2002. She has problems with balance and memory and a tremor in her right hand. Roprinirole controls her symptoms well.
Nerves & brain
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Parkinson's disease
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3-4 years
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Angela - Interview 10
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Angela’s GP had no idea what was wrong with her but agreed to enter her for a ‘nerve trial’. Once at the hospital the cause of her problems was recogn
Angela was diagnosed in 2004 with Parkinson’s Disease. She takes Ropinirole, Orphenadrine and Requip. Acupuncture has helped her symptoms.
Nerves & brain
>>
Parkinson's disease
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5-7 years
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Karen - Interview 12
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Karen looked for information about the pills she had been given on the internet.
Karen was 34 when she first started having symptoms down the right side of her body. She experiences a lot of freezing and festination and some dyskinesia.
Nerves & brain
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Parkinson's disease
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8-12 years
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Ruth - Interview 26
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Ruth was shocked at her GP’s apparent indifference to the news of her Parkinson’s disease. She brings him printouts of information from the internet.
Ruth was diagnosed 9 years ago. She has tremor, stiffness, difficulty sleeping and tiredness. She has to pace herself. Some days are easier to cope with than others.
Nerves & brain
>>
Parkinson's disease
>>
Over 12 years
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Geraldine - Interview 28
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Geraldine described why she decided to register with a new young GP, who has helped her to cope.
Geraldine was diagnosed in 1990. She was a single parent with three teenage children. She never-the-less succeeded in holding increasingly demanding executive jobs in the voluntary sector and was finally chief executive of the Charities Commission before retiring recently. And she is still working on many projects and committees.
Nerves & brain
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Parkinson's disease
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Carers
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Anna - Interview 29
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Anna would have liked to be able to discuss her concerns but was reticent about approaching their GP
Her partner was diagnosed with PD 18 months ago. So far he doesn’t need medication and they have told very few people about the diagnosis
Nerves & brain
>>
Parkinson's disease
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5-7 years
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Rachel - Interview 39
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Rachel saw how difficult it may be for a GP who does not know you well to make an accurate assessment of changes which might be very slight.
Rachel was diagnosed 6 years ago when she was 70. She takes Madopar which allows her to function pretty normally. She is not sure whether things take longer to do is because of her age or because of her Parkinsons disease.
Nerves & brain
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Parkinson's disease
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Carers
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Mari - Interview 45
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Mari suspected that Humphrey couldn’t resist putting on a show for his doctor and that as a carer perhaps she should have told him the truth.
Mari describes what it’s like seeing and, herself, dealing with the symptoms of her husband’s Parkinson’s Disease.
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