home
a-z of conditions
forums
news
about us
See all conditions
Nerves & brain
Parkinson's disease
Forum
Resources & Information
Subject index
Credits
Full list of topics
Discovery :
Early symptoms
Path to diagnosis
Getting the diagnosis
Telling others
Information
Causes of Parkinson’s disease
Treatment :
Levodopa
Dopamine receptor agonists
Managing medication
The operation: Deep Brain Stimulation
Professional help
Self help
Parkinson's symptoms :
Tremor, loss of control
Movement
Embarrassing symptoms
Mental disturbances
Living with Parkinson's disease :
Redefining yourself
Keeping going
Work, career, benefits
Driving and journeys
Support and support groups
Parkinson’s UK and Parkinson’s disease nurses
Now and the future
Caring, care and carers
Advice to others
Search the whole site
Search in this condition
Parkinson's disease
Subject index
Clip
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Keith - Interview 14
>>
Keith had done quite a lot of research before going to the neurologist.
Keith’s symptoms have progressed slowly since he was diagnosed in 2004. His symptoms are tremor in his left hand, slowness and fatique. He is currently taking Madopar.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
>>
Gina - Interview 41
>>
Gina, who knew nothing about Parkinson’s disease at the time of her diagnosis went away confused and terrified.
After Gina was put on Ropinerole she started gambling on the internet and lost large sums of money. There was no indication at that time on the leaflet that came with the medication that gambling might be a problem.
Nerves & brain
>>
Parkinson's disease
>>
8-12 years
>>
Ruth - Interview 26
>>
Ruth described the brutality of the original delivery of her diagnosis, her immediate reaction, ways in which people have been able to help and how th
Ruth was diagnosed 9 years ago. She has tremor, stiffness, difficulty sleeping and tiredness. She has to pace herself. Some days are easier to cope with than others.
Nerves & brain
>>
Parkinson's disease
>>
2 years or under
>>
Elaine - Interview 34
>>
For Elaine too the diagnosis and also the start of treatment made sense of symptoms for which she had been blaming herself and her circumstances.
Elaine was diagnosed abut 6 months ago though some of her symptoms had been coming on for several years. Many of the problems she had had have improved since she began on medication.
Nerves & brain
>>
Parkinson's disease
>>
8-12 years
>>
Sharon - Interview 31
>>
Sharon had suspected for some time that she might have a serious neurological disorder and was determined to keep the diagnosis to herself.
Forced by her Parkinsons symptoms to retire from a career she loved as a teacher Sharon turned things round by becoming a business woman creating the very successful Cake Bake Company.
Nerves & brain
>>
Parkinson's disease
>>
DBS
>>
Elisabet - Interview 08
>>
Elisabet was aware that something was wrong but didn’t allow herself to consider that it might be something serious.
Elisabet was diagnosed in 1990. In 2006, she had deep brain stimulation which was successful and has improved her symptoms considerably.
Nerves & brain
>>
Parkinson's disease
>>
Over 12 years
>>
Tom - Interview 06
>>
Tom came out of the neurologist's waiting room to the horrific realisation that in time he would be like the people he had seen there. Before he went
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.
Nerves & brain
>>
Parkinson's disease
>>
DBS
>>
Stephen - Interview 44
>>
Stephen described his reaction to people with neurological problems before he became one himself.
Stephen was diagnosed with PD when he was 33. After several years when no medication proved successful this was redefined as Parkinsonism and he was offered the DBS operation, This was carried out in 2005 with very good results.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
>>
Jean - Interview 33
>>
Jean had been told several times that she had nothing wrong with her so her diagnosis came as a kind of vindication.
Jean had noticed jumping in one leg and general difficulty walking for at least two years before she was diagnosed with both Parkinsons Disease and ME, having at fist been told she had nothing wrong with her. To high doses of her medication resulted in her having hallucinations.
Nerves & brain
>>
Parkinson's disease
>>
2 years or under
>>
Ann - Interview 19
>>
Ann came to adopt a very positive attitude to the diagnosis she had been given.
Diagnosed three years ago, Ann has tremor in her right hand. The first year after diagnosis was very difficult, but since taking Mirapexin, she feels more able to cope.
Nerves & brain
>>
Parkinson's disease
>>
8-12 years
>>
Judie - Interview 20
>>
Judie described the unfeeling attitude of the neurologist she had gone to see privately and suggests some of the things that might have made the consu
Although having Parkinson’s meant that Judie had to give up work, she has found herself doing all sorts of adventurous things she might never have done otherwise.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Nicolas - Interview 23
>>
Nicolas feels that he had been in denial and regrets that he failed to share with his partner the concerns which actually affected both of them.
Diagnosed 4 years ago, Nicolas now takes a low dose of Mirapexin. He works full time. He experiences stiffness, tiredness and difficulties with walking and handwriting.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
>>
Fiona and John - Interview 09
>>
Fiona realised that it might not have been easy for the consultant having to tell them the diagnosis.
Fiona’s husband was diagnosed in 2003 at the age of 42 with early onset Parkinson’s Disease. He has continued to work full time.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Humphrey - Interview 01
>>
Humphrey had looked up the symptoms and decided that he should write about his experiences.
Humphrey was able to continue working as a writer, broadcaster and musician after he was diagnosed. Although his Parkinson’s was progressing fairly quickly he maintained a resolutely positive attitude, trying to solve each problem as it presented itself, such as voice recognition software when typing became difficult. He died unexpectedly of a heart attack in 2005.
Nerves & brain
>>
Parkinson's disease
>>
2 years or under
>>
Penny - Interview 17
>>
When Penny was referred on by her GP she was expecting to discover that her symptoms were caused by stress.
Although she was advised not to mention her newly diagnosed Parkinson’s disease when she had to change her job she has found that disclosure was necessary. As a divorced woman she can’t help worrying about who will care for her in future if her condition deteriorates.
Mail to a friend