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Parkinson's disease
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Discovery :
Early symptoms
Path to diagnosis
Getting the diagnosis
Telling others
Information
Causes of Parkinson’s disease
Treatment :
Levodopa
Dopamine receptor agonists
Managing medication
The operation: Deep Brain Stimulation
Professional help
Self help
Parkinson's symptoms :
Tremor, loss of control
Movement
Embarrassing symptoms
Mental disturbances
Living with Parkinson's disease :
Redefining yourself
Keeping going
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Parkinson’s UK and Parkinson’s disease nurses
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Parkinson's disease
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Parkinson's disease
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Parkinson's disease
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Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Keith - Interview 14
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Keith had done quite a lot of research before going to the neurologist.
Keith’s symptoms have progressed slowly since he was diagnosed in 2004. His symptoms are tremor in his left hand, slowness and fatique. He is currently taking Madopar.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Humphrey - Interview 01
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When he was a child Humphrey knew two people who had clearly recognisable symptoms of Parkinson’s.
Humphrey was able to continue working as a writer, broadcaster and musician after he was diagnosed. Although his Parkinson’s was progressing fairly quickly he maintained a resolutely positive attitude, trying to solve each problem as it presented itself, such as voice recognition software when typing became difficult. He died unexpectedly of a heart attack in 2005.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
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Keith - Interview 14
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Finding out about the disease has its pros and cons. Because the disease and the symptoms vary so much you never know how it will affect you.
Keith’s symptoms have progressed slowly since he was diagnosed in 2004. His symptoms are tremor in his left hand, slowness and fatique. He is currently taking Madopar.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Peter - Interview 11
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Peter's colleague warned him off a ‘frightening’ book on Parkinson’s. He has decided he would prefer to enjoy himself now and not to dwell on what mig
Peter was diagnosed six years ago. He experiences tremor, freezing and rigidity and considerable problems sleeping at night. He takes slow release Sinemet and Amitriptyline.
Nerves & brain
>>
Parkinson's disease
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5-7 years
>>
Fiona and John - Interview 09
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They were initially careful to avoid upsetting information – Fiona would read things before her husband. A point came when they did not want to know m
Fiona’s husband was diagnosed in 2003 at the age of 42 with early onset Parkinson’s Disease. He has continued to work full time.
Nerves & brain
>>
Parkinson's disease
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5-7 years
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David - Interview 43
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David always read the leaflets which came in the pill packets which is why he is sure compulsive side effects were not mentioned.
When David was diagnosed with PD he was put on Requip (ropinirole). When he realized that he had a problem with hypersexuality he was changed onto Mirapaxin. He then got disastrously involved in gambling. Now he no longer takes dopamine agonists and no longer experiences any compulsive tendencies.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
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Rex - Interview 04
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Rex found information in the library and then contacted the Parkinson’s Society (now Parkinson's UK) for booklets. His branch has helped to provide in
Rex was diagnosed six years ago. His main symptom now is tremor in his right hand and he is still active and mobile.
Nerves & brain
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Parkinson's disease
>>
5-7 years
>>
Fiona and John - Interview 09
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Although the consultant advised them against looking at the internet, there was so much they wanted to know that they went straight home and did.
Fiona’s husband was diagnosed in 2003 at the age of 42 with early onset Parkinson’s Disease. He has continued to work full time.
Nerves & brain
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Parkinson's disease
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5-7 years
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Wendy - Interview 07
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Wendy enjoyed reading a book written by an American woman who had rather similar symptoms and a refreshingly upbeat attitude. Has met wonderful people
Wendy was diagnosed in 2002. She has problems with balance and memory and a tremor in her right hand. Roprinirole controls her symptoms well.
Nerves & brain
>>
Parkinson's disease
>>
3-4 years
>>
Humphrey - Interview 01
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Humphrey was curious about other people’s experiences of Parkinson’s and joined a group for younger people with the disease, but it was not very activ
Humphrey was able to continue working as a writer, broadcaster and musician after he was diagnosed. Although his Parkinson’s was progressing fairly quickly he maintained a resolutely positive attitude, trying to solve each problem as it presented itself, such as voice recognition software when typing became difficult. He died unexpectedly of a heart attack in 2005.
Nerves & brain
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Parkinson's disease
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8-12 years
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Natalia - Interview 18
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Natalia enjoyed meeting a local man with Parkinson’s and found a local group more reassuring than she expected.
Diagnosed in 1999, Natalia takes Madopar and Mirapexin but has times during the day when she feels weak, and has difficulty standing and understanding and participating in conversations.
Nerves & brain
>>
Parkinson's disease
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DBS
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Khadim - Interview 38
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Khadim was very interested by a television programme about Mohammed Ali and another about a British journalist who had surgery.
Khadim’s Parkinsons disease was diagnosed in 2002. Although he was tried on many different treatments none of them helped. In January 2008 he was given Deep Brain Stimulation. This has been very successful.
Nerves & brain
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Parkinson's disease
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Over 12 years
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Tom - Interview 06
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Tom says that the internet has dramatically altered how people experience illness. Patients want to learn from each other; scientists could learn much
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
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David - Interview 43
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David set up a website message board for people in the UK with Parkinson’s but when it started to be dominated by US experiences he found it hard to c
When David was diagnosed with PD he was put on Requip (ropinirole). When he realized that he had a problem with hypersexuality he was changed onto Mirapaxin. He then got disastrously involved in gambling. Now he no longer takes dopamine agonists and no longer experiences any compulsive tendencies.
Nerves & brain
>>
Parkinson's disease
>>
8-12 years
>>
Ruth - Interview 26
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Ruth was shocked at her GP’s apparent indifference to the news of her Parkinson’s disease. She brings him printouts of information from the internet.
Ruth was diagnosed 9 years ago. She has tremor, stiffness, difficulty sleeping and tiredness. She has to pace herself. Some days are easier to cope with than others.
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