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Nerves & brain
Parkinson's disease
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Discovery :
Early symptoms
Path to diagnosis
Getting the diagnosis
Telling others
Information
Causes of Parkinson’s disease
Treatment :
Levodopa
Dopamine receptor agonists
Managing medication
The operation: Deep Brain Stimulation
Professional help
Self help
Parkinson's symptoms :
Tremor, loss of control
Movement
Embarrassing symptoms
Mental disturbances
Living with Parkinson's disease :
Redefining yourself
Keeping going
Work, career, benefits
Driving and journeys
Support and support groups
Parkinson’s UK and Parkinson’s disease nurses
Now and the future
Caring, care and carers
Advice to others
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Parkinson's disease
Subject index
Clip
Nerves & brain
>>
Parkinson's disease
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2 years or under
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Elaine - Interview 34
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Elaine was given a thorough examination the first time she saw the neurologist.
Elaine was diagnosed abut 6 months ago though some of her symptoms had been coming on for several years. Many of the problems she had had have improved since she began on medication.
Nerves & brain
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Parkinson's disease
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Carers
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Mari - Interview 45
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Mari suspected that Humphrey couldn’t resist putting on a show for his doctor and that as a carer perhaps she should have told him the truth.
Mari describes what it’s like seeing and, herself, dealing with the symptoms of her husband’s Parkinson’s Disease.
Nerves & brain
>>
Parkinson's disease
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8-12 years
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Natalia - Interview 18
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Natalia saw a consultant who dismissed her symptoms and seemed irritated by her suggestion that she had Parkinson’s Disease.
Diagnosed in 1999, Natalia takes Madopar and Mirapexin but has times during the day when she feels weak, and has difficulty standing and understanding and participating in conversations.
Nerves & brain
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Parkinson's disease
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5-7 years
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Bob - Interview 22
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Bob feels he can rely on his neurologist. He is easy to reach and understands him.
Bob was 51 when he was diagnosed. He has tremor in his right hand and is slower at doing things. He continues to work full time.
Nerves & brain
>>
Parkinson's disease
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3-4 years
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Nicolas - Interview 23
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Nicolas was slightly surprised that the NHS consultant had a different view on medication to the one he had seen privately.
Diagnosed 4 years ago, Nicolas now takes a low dose of Mirapexin. He works full time. He experiences stiffness, tiredness and difficulties with walking and handwriting.
Nerves & brain
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Parkinson's disease
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8-12 years
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Sharon - Interview 31
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Sharon distinguishes between what is best talked about to the neurologist and what the nurse is better for.
Forced by her Parkinsons symptoms to retire from a career she loved as a teacher Sharon turned things round by becoming a business woman creating the very successful Cake Bake Company.
Nerves & brain
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Parkinson's disease
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8-12 years
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Natalia - Interview 18
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Natalia had not been convinced that it was appropriate to accept advice on medication from anyone other than the neurologist.
Diagnosed in 1999, Natalia takes Madopar and Mirapexin but has times during the day when she feels weak, and has difficulty standing and understanding and participating in conversations.
Nerves & brain
>>
Parkinson's disease
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Over 12 years
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Tom - Interview 06
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Tom thought that because some pink tablets relieved his symptoms this meant he was OK. He didn’t realise the test had revealed his diagnosis.
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.
Nerves & brain
>>
Parkinson's disease
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Over 12 years
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Tom - Interview 06
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Tom would like to know that his needs will be recognised and that appropriate support would be available should he need it.
Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
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Wendy - Interview 07
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Wendy had had symptoms for five years before she saw a neurologist who said she had to wait another year for him to be sure of the diagnosis.
Wendy was diagnosed in 2002. She has problems with balance and memory and a tremor in her right hand. Roprinirole controls her symptoms well.
Nerves & brain
>>
Parkinson's disease
>>
5-7 years
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Karen - Interview 12
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Karen looked for information about the pills she had been given on the internet.
Karen was 34 when she first started having symptoms down the right side of her body. She experiences a lot of freezing and festination and some dyskinesia.
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