Living with Parkinson's
Treatments and therapies
Younger people's publications
Children and teenagers' publications
The Carer's Guide (Code B071)
Employment Guide (Code B103)
Publications for health and social care professionals

Living with Parkinson's

www.parkinsons.org.uk/advice/publications/day-to-day_living.aspx

The PDS produces a range of publications on living with Parkinson's which offer advice, information and guidance. All the publications below are available to download in PDF format or to order.

 

An Introduction to Parkinson's (Code L001)
Introductory leaflet on the PDS and its work.


Choices: A Guide to Health and Social Care Services (Code B079)
This booklet offers a definitive guide to a whole range of health and social care issues related to Parkinson's.

 

Keeping Moving - Exercise and Parkinson's (Code B074)
Devised by physiotherapists, these exercises can be done at home. This booklet can be used in conjunction with the PDS video Keep Moving. This booklet is also available in Large print (A4) version (Code B74B)

 

Looking after your Bladder and Bowels in Parkinsonism (Code B060)
A practical guide to bladder and bowel care, produced in association with the Continence Foundation.

 

Moving On (Code B001)
This booklet is for people who have had Parkinson's for some time.

 

Parkinson's and You (Code B181)
An introductory guide to Parkinson's and the PDS, with information about symptoms, treatments, life with Parkinson's in general and the help available.  Parkinson's and You is also available in Audio tape version.

 

Parkinson's and Dental Health  (Code B045)
Written by a dentist for people who have had Parkinson's for some time, this booklet is also useful for those working in dental health.

 

Parkinson's and Diet (Code B065)
This booklet contains general guidelines on diet, including tips on shopping, cooking and eating. It also answers commonly asked nutritional questions related to Parkinson's. This booklet is also available in Large print (A4) version (Code B65B)

 

Driving and Parkinson's  (Code B064)
This publication outlines the rights and obligations of people with Parkinson's who drive. It also answers commonly asked questions and signposts sources of help and advice. This booklet is also available in Large print (A4) version (Code B64B)

 

Intimate Relationships and Parkinson's (Code B034)
For people with Parkinson's and their partners who are experiencing problems with sex. This booklet outlines the possible solutions and sources of further advice. This booklet is also available in Large print (A4) version (Code B34B)

 

Living with Parkinson's (Code B077)
This booklet addresses many of the issues that people with Parkinson's who are of working age may face.



Treatments and therapies

www.parkinsons.org.uk/advice/publications/treatments_and_therapies.aspx

The PDS produces a range of booklets on available treatments and therapies for Parkinson's disease. All the publications below are available to download in PDF format or to order.

 

Complementary Therapies and Parkinson's Disease (Code B102)
This booklet gives details of a range of complementary therapies and how they may alleviate the symptoms of Parkinson's. Includes research into any benefits found and where to seek further information.

 

The Drug Treatment of Parkinson's Disease (Code B013)
Detailed information about the medications currently available to treat Parkinson's, including their effects and side effects. This booklet is also available in Large print (A4) version (Code B74B).

 

Surgery and Parkinson's (Code B123)
This booklet outlines the surgical options that are available to treat Parkinson's.

 

What You Need to Know about the NICE Guideline for Parkinson's Disease (Code B112)



Younger people's publications

www.parkinsons.org.uk/advice/younger-people.aspx

It is estimated that 1 in 20 of the 10,000 people diagnosed in the UK with Parkinson's is under 40. The following publications are available to download from PDS in PDF format or to order:

 

Living with Parkinson's (Code B077)
This booklet addresses many of the issues that people with Parkinson's who are of working age may face.

 

Introduction to YPN (Younger Parkinson's Network) leaflet  (Code L1Y0)
An information leaflet on the PDS volunteer group which provides focus for younger people.



Children and teenagers' publications

www.parkinsons.org.uk/advice/publications/carers_and_family.aspx

The Parkinson's Disease Society publishes a range of publications for children and teenagers to explain the condition of Parkinson's. The booklets below are available  to order from PDS.

 

My Gran has Parkinson’s (code B086)


My Grandad has Parkinson’s (Code B087)


My Mum has Parkinson’s (Code B088)

An illustrated story booklet for 3 to 11 year olds that tells the story of Megan and how she, her brother and sister cope with their mum's Parkinson's.


My Dad has Parkinson’s (Code B089)


Parkinson's: The Facts – a leaflet for teenagers (Code B085)

A booklet to help 11 to 17 year olds understand Parkinson's.



The Carer's Guide (Code B071)

www.parkinsons.org.uk/advice/publications/carers_and_family/the_carers_guide.aspx

The following booklet is available to download in PDF format or to order. A guide for those who care for someone with Parkinson's, covering issues such as recognition, support, breaks, finances and accessing services.



Employment Guide (Code B103)

www.parkinsons.org.uk/advice/publications/day-to-day_living/employment_guide.aspx

The following booklet is available to download in PDF format or to order. This is a guide to help people with Parkinson's make informed decisions around employment, benefits and legal rights after diagnosis. It also includes signposts to other information.



Publications for health and social care professionals

www.parkinsons.org.uk/advice/publications/professionals.aspx

The PDS publishes several booklets that are important resources for professionals working with people living with Parkinson's. The booklets below are available to download in PDF format or to order.

 

The Professional's Guide to Parkinson's Disease (Code B126)
This Guide recommends best practice for health and social care professionals working with people with Parkinson's. Written by leading experts in the relevant fields, it includes sections for dieticians, GPs, nurses, occupational therapists, pharmacists, physiotherapists, social workers and speech and languages therapists.

 

Caring for a resident with Parkinson's Disease (Code B114)
This leaflet for care home staff explains the requirements of care home residents with Parkinson's.

 

Essence of Care (Code B110)
Continence care for people with Parkinson's, produced in association with PDNSA, RCN, BGS (Parkinson's section) and Promo Con.

 

Non-motor symptoms questionnaire  (Code B117)
A questionnaire for patients to complete to help health professionals assess their non-motor Parkinson's symptoms.

 

Parkinson's Disease: A Signs and Symptoms Guide (Booklet & DVD) (Code V013)
This is an education tool to assist healthcare professionals in presentations on Parkinson's.

 

Sleeping Scale

 

When your patient has Parkinson's: Information for Ward staff  (Code B030)
This leaflet highlights to ward staff the specific needs of a person with Parkinson's.

 

Working together locally (Code B100)
This booklet outlines good practice for staff in local authority departments.
 

Competencies: a competency framework for nurses working in Parkinson's disease management
A competency framework that describes the knowledge and skills required by nurses to manage the care of people living with Parkinson’s disease in any healthcare setting and offers signposts for good practice

 



Jonathan Miller - Parkinsons
Parkinson's disease
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