Tom - Interview 06  

Tom - Interview 06

Age at Interview: 40
Sex: Male
Age at Diagnosis: 27
Background: Married, runs cureparkinsons.org

Brief outline:Tom was 27 when he was diagnosed. His medication includes levodopa. He experiences ‘on’ and ‘off’ periods most days. During the on period he may also have dyskinesia. He set up the Cure Parkinson’s Trust.

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Tom explains the difference for him between getting stuck in doorways and going up stairs or catching a ball.

 



It is, I get this, thing called festination which is, which is sort of lots of little steps basically and it’s very difficult I get stuck in doorways and things like that, And yet it’s very strange because I, it’s only open, open spaces that I can, I get this thing. If you get me in, in a, up a flight of stairs I’d be up them no problem at all because it’s this sort of queuing system where, where, and, you know, if, if, in the morning if, if someone chucked a ball at me my hand would go straight out like that. And yet if you asked me to put my arm out like that it would, it would go, like that so slow, and I could play ping pong and it would be no problem but, but ask me to, ask me to walk through a door I just get, I’d, I would get locked rigid it’s very strange.

Jonathan Miller - Parkinsons
Parkinson's disease
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