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Nerves & brain
Parents of children on the Autism Spectrum
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The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 12-17
>>
Dot - Interview 9
>>
Dot’s son has a complicated bedtime routine which, at one time, involved listening to Bohemian Rhapsody 96 times.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen - Interview 41
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Helen has found social stories work well with her son.
Helen’s older son, Joseph, was diagnosed with autism when he was 7 years old. Joseph now attends an independent church school after a negative experience in a mainstream primary school and is making good progress with appropriate support.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 12-17
>>
Dot - Interview 9
>>
Dot’s son has a complicated bedtime routine which, at one time, involved listening to Bohemian Rhapsody 96 times.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 6-11
>>
Jeanine - Interview 46
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Jeanine has to take her flexi-time or annual leave to attend appointments and assessments and describes how difficult it is to juggle work and childca
Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 12-17
>>
Dot - Interview 9
>>
Dot’s son has a complicated bedtime routine which, at one time, involved listening to Bohemian Rhapsody 96 times.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 12-17
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Rosie - Interview 18
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Rosie wants her son to eat properly for social reasons and he would rather eat a lot of one thing rather than various foods.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Jacqui - Interview 31
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Jacqui describes how mealtimes at her house would seem bizarre to other people because her children all eat different foods.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Topic
Autism
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Parents of children on the Autism Spectrum
>>
Positive change over time
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Positive change over time
Positive changes over time
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Parents of children on the Autism Spectrum
>>
Positive change over time
>>
Positive change over time
Positive changes over time
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 12-17
>>
Dot - Interview 9
>>
Dot’s son did not want a clock in his room because each minute is one nearer his death.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 6-11
>>
Mary-Anne - Interview 25
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Mary-Ann gives Arthur detailed time checks so that he knows exactly what will be happening during the day.
Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.
Autism
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Parents of children on the Autism Spectrum
>>
Age 12-17
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Jane - Interview 27
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Jane’s son understands nuclear fission but cannot see dirt on a plate he is washing up. Attempts to hurry him stress him all the more.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Nick and Vikki - Interview 34
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Nick and Vikki find their son’s tantrum’s difficult to control now he has grown older.
Nick and Vikki’s younger son, Peter, was diagnosed with Asperger syndrome when he was five years old. He attends a specialist resourced provision attached to a mainstream primary school which he enjoys.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 6-11
>>
Helen - Interview 41
>>
Helen describes her son’s meltdowns as “like a monster exploding”.
Helen’s older son, Joseph, was diagnosed with autism when he was 7 years old. Joseph now attends an independent church school after a negative experience in a mainstream primary school and is making good progress with appropriate support.
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