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Nerves & brain
Parents of children on the Autism Spectrum
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The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
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Therapies
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui thinks that the emphasis in mainstream education is wrong for many children with autism and describes Joe’s struggles at school.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Paula - Interview 5
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Paula took the school to tribunal when her son did not get the support he was entitled to as he moved between classrooms in the school corridors.
Paula’s older son Alex was diagnosed with Asperger syndrome two years ago and her younger son David has been diagnosed with ADD, Oppositional Defiance Disorder, agitated depression, speech dyspraxia and Asperger syndrome over the years. Both boys attend a mainstream secondary school and Paula is still trying to organize appropriate support for David.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina talks about the constraints on her family because her time has been taken up with her son.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike’s family has tried to go out and do “normal family things” but they have had to adapt considerably.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Christine - Interview 21
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Christine’s daughter either talks to strangers or runs off in supermarkets.
Christine’s daughter, Elisabeth, was diagnosed with autistic spectrum disorder complex, ADHD, separation anxiety, Oppositional Defiance Disorder and learning difficulties. She is currently out of school because of the lack of effective support.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Kirsten - Interview 43
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Kirsten’s son wears coloured glasses to help his concentration.
Kirsten’s middle child, Andrew, was diagnosed with autism when he was two. He attends a mainstream primary school in the mornings and does a combination of ABA and DIR therapies in the afternoons.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Kirsten - Interview 43
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Kirsten’s day starts at 4am when her son wakes up.
Kirsten’s middle child, Andrew, was diagnosed with autism when he was two. He attends a mainstream primary school in the mornings and does a combination of ABA and DIR therapies in the afternoons.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen and Jason - Interview 12
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Helen explains why her son cannot go to soft play areas.
Helen and Jason’s older son,Joshua, was diagnosed with Asperger syndrome when he was five years old. He attends the local mainstream primary school but his parents are worried about his education and would like to find specialist provision for him.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Joy - Interview 48
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Joy describes the first significant event on a train journey when her son became very distressed by a noise she could not hear.
Joy’s son was diagnosed with Asperger syndrome when he was six years old. He attends a mainstream secondary school and is getting on very well.
Topic
Autism
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Parents of children on the Autism Spectrum
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Fears, anxieties, sensory issues and meltdowns
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Fears, anxieties, sensory issues and meltdowns
Fears, anxieties, sensory issues and meltdowns
>>
Parents of children on the Autism Spectrum
>>
Fears, anxieties, sensory issues and meltdowns
>>
Fears, anxieties, sensory issues and meltdowns
Fears, anxieties, sensory issues and meltdowns
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Daryll - Interview 6
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Daryll describes how important it is for Tiffany to go to university because if not, she will probably remain at home forever.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Rachel - Interview 8
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Massage brushing helps de-sensitise Rachel's son's hypersensitivity to noise, smell and textures.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Rachel - Interview 8
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Rachel describes a trip to the shoe shop with her sons.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
>>
Age 6-11
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Rachel - Interview 8
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Rachel’s son could not physically stand having her close to him when he was younger and has just learned to enjoy a hug.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Jacqui - Interview 31
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Jacqui talks about the major planning that goes into a trip out and how nice it would be to just go out to the pub for lunch.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 18+
>>
Jacqui - Interview 31
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Jacqui’s son Ben is a ‘born worrier’ while Joe is like Billy Whizz.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
>>
Parents of children on the Autism Spectrum
>>
Age 18+
>>
Jacqui - Interview 31
>>
Jacqui has to cut the label off clothes for Ben when she buys them in the shop.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
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