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Nerves & brain
Parents of children on the Autism Spectrum
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Subject index
Credits
Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Sandy - Interview 1
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Sandy read a leaflet and found that Joseph had about seven of the eight autism traits listed so was prepared to receive the diagnosis.
Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Paula - Interview 5
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Paula felt “incredible relief” to get the diagnosis as she had been questioning her parenting ability.
Paula’s older son Alex was diagnosed with Asperger syndrome two years ago and her younger son David has been diagnosed with ADD, Oppositional Defiance Disorder, agitated depression, speech dyspraxia and Asperger syndrome over the years. Both boys attend a mainstream secondary school and Paula is still trying to organize appropriate support for David.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Daryll - Interview 6
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Darryl ordered some books about Asperger syndrome and read bits to her daughter who was relieved that she “was not mad”.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel describes how he felt when Jonathan was diagnosed.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Rachel - Interview 8
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Rachel was relieved to get the diagnosis but then found herself frightened about the long-term implications for her son.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot felt the diagnosis would make everyone take her seriously at last and when she got home phoned everyone to tell them the news.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina attended a three week assessment with her son.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Tracy - Interview 13
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Tracy experienced ‘waves of euphoria and fear’ when her daughter was diagnosed and still feels her emotions are in turmoil over ten years later.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Nicki and Mark - Interview 14
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Nicki struggled with feelings of guilt and anxiety about Tyler’s future for 18 months after receiving the diagnosis.
Nicki and Mark’s son, Tyler, was diagnosed with autism when he was four years old. He attends a special school and they are delighted with his progress.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Mary-Anne - Interview 25
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Mary-Ann felt devastated when her son was diagnosed but came to recognise that what mattered most was for him to be happy.
Mary-Anne’s son, Arthur, was diagnosed with Asperger syndrome, Tourettes syndrome and elements of ADHD and OCD three years ago. He attends a special school which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Alison and Tony felt differently about the diagnosis; Tony says it was cold comfort, while Alison felt more emotional.
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann felt vindicated on receiving the diagnosis because she was not “mad, bad or sad” and neither was her daughter.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Joy - Interview 48
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Joy found the period after getting the diagnosis confusing and found it too painful to discuss with people.
Joy’s son was diagnosed with Asperger syndrome when he was six years old. He attends a mainstream secondary school and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Bobbi - Interview 30
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Bobbi describes getting the diagnosis as ‘light bulb moments going off all over the place’.
Bobbi’s younger son, Charlie, was diagnosed with autism when he was five. He attends a local primary school with support and is getting on very well.
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