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Nerves & brain
Parents of children on the Autism Spectrum
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The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Kirsten - Interview 43
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Kirsten describes her experiences of ABA and DIR.
Kirsten’s middle child, Andrew, was diagnosed with autism when he was two. He attends a mainstream primary school in the mornings and does a combination of ABA and DIR therapies in the afternoons.
Topic
Autism
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Parents of children on the Autism Spectrum
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Effect on relationships
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Effect on relationships
Effect on relationships
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Parents of children on the Autism Spectrum
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Effect on relationships
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Effect on relationships
Effect on relationships
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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John and Lynne - Interview 47
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John and Lynne have supported each other but also drawn support from knowing that Gavin is in safe hands.
John and Lynne’s younger son, Gavin, was diagnosed with autism when he was 14 years old. He lives in a residential facility attached to his old school and John and Lynne feel he has had excellent support over the years.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen - Interview 41
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Helen has found remaining focused, trying to remain positive and making sure she gets what they are entitled to in the way of support.
Helen’s older son, Joseph, was diagnosed with autism when he was 7 years old. Joseph now attends an independent church school after a negative experience in a mainstream primary school and is making good progress with appropriate support.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Amanda - Interview 29
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Amanda has been helped by a supportive partner, family members, a support group, yoga and wine.
Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Nuala - Interview 56
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Nuala and her husband have got into the habit of socialising separately and only manage to go out together on special occasions.
Nuala’s son, Robert, was diagnosed with Asperger syndrome when he was eight years old. He attends a mainstream primary school with support and is now much happier and settled.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Rachel - Interview 8
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Rachel thinks her son will have a hard time with puberty because he will be bothered by bodily changes.
Rachel’s sons, Thomas and Matthew, have both been diagnosed with Asperger syndrome. They both attend a mainstream primary school with support.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina is glad that Callum has got such a good relationship with her mum.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Tracy - Interview 13
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Tracy describes how Nicola is very capable but she is not sure whether she could live independently.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike thinks that having a child with autism is a ‘good birth control method’.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane’s son finds it hard if what people say is inconsistent with what they do.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
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