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Nerves & brain
Parents of children on the Autism Spectrum
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Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Christine - Interview 20
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Christine didn’t want to believe her son had autism because he had been misdiagnosed many years before.
Christine’s son, Brian, was diagnosed with Asperger syndrome four years ago after being wrongly diagnosed with schizophrenia when he was 14. He lives at home now after years in a residential home and attends an autism day centre during the week.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Jeanine - Interview 46
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Interview 46: Jeanine describes how the diagnosis was given with her son present and she doesn’t know how she managed to drive home afterwards.
Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Joy - Interview 48
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Joy found the period after getting the diagnosis confusing and found it too painful to discuss with people.
Joy’s son was diagnosed with Asperger syndrome when he was six years old. He attends a mainstream secondary school and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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A psychologist sitting in on a family counselling session suggested that Nicole may have Asperger syndrome.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen - Interview 41
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The clinical psychologist gave the diagnosis gently but “did not hold back” which Helen thought was the best way to do it.
Helen’s older son, Joseph, was diagnosed with autism when he was 7 years old. Joseph now attends an independent church school after a negative experience in a mainstream primary school and is making good progress with appropriate support.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Helen and Jason - Interview 12
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A reception teacher helped Helen and Jim to get the diagnosis but they should not have needed to push so hard.
Helen and Jason’s older son,Joshua, was diagnosed with Asperger syndrome when he was five years old. He attends the local mainstream primary school but his parents are worried about his education and would like to find specialist provision for him.
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