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Nerves & brain
Parents of children on the Autism Spectrum
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Full list of topics
The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
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Parents of children on the Autism Spectrum
Subject index
Topic
Autism
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Parents of children on the Autism Spectrum
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Difficulties in education; disliking school
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Difficulties in education; disliking school
Difficulties in education; disliking school
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Parents of children on the Autism Spectrum
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Difficulties in education; disliking school
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Difficulties in education; disliking school
Difficulties in education; disliking school
Autism
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Parents of children on the Autism Spectrum
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Difficulties in education; getting a statement
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Difficulties in education; getting a statement
Difficulties in education; getting a statement
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Parents of children on the Autism Spectrum
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Difficulties in education; getting a statement
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Difficulties in education; getting a statement
Difficulties in education; getting a statement
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Liz - Interview 2
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Liz’s son contains himself at school but has a whole day of tension and anxiety to release when he gets home.
Liz’s son, Jonas, aged 11, has been diagnosed with epilepsy, ADHD and Asperger syndrome and Raphe, the youngest son, has Downs Syndrome. Jonas attends the local mainstream primary school but Liz is worried about the move to secondary school.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Paula - Interview 5
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Paula thinks it is difficult for teachers to be able to teach a class of thirty children with different needs.
Paula’s older son Alex was diagnosed with Asperger syndrome two years ago and her younger son David has been diagnosed with ADD, Oppositional Defiance Disorder, agitated depression, speech dyspraxia and Asperger syndrome over the years. Both boys attend a mainstream secondary school and Paula is still trying to organize appropriate support for David.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel thinks the education system simply lower the age level when teaching children with autism.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel says there is no such condition as ‘special needs’ and teaching children with autism need not be expensive.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot recounts an incident when her son was bullied in the mainstream school and how the teacher from his specialist unit dealt with it.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot describes how having teachers who want to help are “like gold” and how little understanding there is of Asperger syndrome.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Dot - Interview 9
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Dot is happy with the Asperger unit her son attends.
Dot’s son Joe was diagnosed with Asperger syndrome when he was 7 years old. He attends a specialist Asperger Unit which is on the site of a mainstream secondary school and he is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina describes the statementing process as a battle which you live with, day after day.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina’s son has missed about two years of school and is only eight years old.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Tracy - Interview 13
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Tracy explains the statementing process.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Nicki and Mark - Interview 14
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Nicki and Mark felt ‘overwhelmed’ when they first went into Tyler’s school because it felt so right for him.
Nicki and Mark’s son, Tyler, was diagnosed with autism when he was four years old. He attends a special school and they are delighted with his progress.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Catherine - Interview 16
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Catherine has run an ABA programme for several years to help develop her daughters’ language skills.
Catherine and her husband have two teenaged daughters, both of whom have been diagnosed with autism. Catherine has homeschooled her daughters using an ABA programme for several years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Catherine - Interview 16
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Catherine explains why she decided to home-school her daughters.
Catherine and her husband have two teenaged daughters, both of whom have been diagnosed with autism. Catherine has homeschooled her daughters using an ABA programme for several years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Rosie - Interview 18
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Rosie describes how Sam could not understand the concept of sitting down and learning.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike describes his son’s residential school.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Mike - Interview 22
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Mike’s son has made “astounding” progress at a residential school for children on the autism spectrum.
Mike’s youngest son, Andrew, was diagnosed with autism when he was three years old. He moved to a specialist residential school a year ago, after spending a year excluded from school because of challenging behaviour.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen gradually noticed her daughter was developing differently.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Nicole found the transition to secondary school very difficult and “mentally and physically” she fell to bits.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen describes the situation leading up to her daughter’s formal exclusion from school.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Karen feels that she has been treated as a an enemy by the education system and children with autism are perceived to be badly behaved.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Jane - Interview 27
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Jane’s son got into difficulties at school when the teacher began to find him precocious.
Jane’s son, John, was diagnosed with Asperger syndrome when he was 9 years old. He is at a mainstream secondary school and hopes to study augmentation, artificial limbs and electronics at university.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Tony and Alison - Interview 28
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Tony and Alison discuss how teaching Nathan geography or French is no use to him but learning to work out his change and what bus to get on to go to t
Tony and Alison’s son, Nathan, was diagnosed with autism three years ago. He is currently in a mainstream primary school and will move to a special school for his secondary education.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Amanda - Interview 29
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Amanda fought to get her son into a school for children with moderate learning difficulties.
Amanda’s two children have both been diagnosed with autism. They attend a special school for children with moderate learning difficulties which they both enjoy.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui is exhausted by constantly having to fight for services and support for her children.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui took Luke out of school when he was 13 because the education system did not meet his needs.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui thinks that the emphasis in mainstream education is wrong for many children with autism and describes Joe’s struggles at school.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Nick and Vikki - Interview 34
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Nick and Vikki surprised their son’s junior school by putting in a parental request for a statement.
Nick and Vikki’s younger son, Peter, was diagnosed with Asperger syndrome when he was five years old. He attends a specialist resourced provision attached to a mainstream primary school which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann thinks parents should “push hard for a statement.. it will have an enormous influence on the rest of your child’s life”.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann describes how “the social times that other children love” terrified her daughter.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Steve - Interview 37
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Steven thinks a lot of opportunities for children are being missed because teachers lack awareness about autism.
Steve and his son have been diagnosed with Asperger syndrome. Steve is studying for a degree in autism using distance learning and has heightened sensory sensitivities and some OCD traits.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Bobbi - Interview 30
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Bobbi describes the statementing process as ‘mind boggling’ but felt well supported by professionals.
Bobbi’s younger son, Charlie, was diagnosed with autism when he was five. He attends a local primary school with support and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Jeanine - Interview 46
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Interview 46: Jeanine describes how the diagnosis was given with her son present and she doesn’t know how she managed to drive home afterwards.
Jeanine’s son was diagnosed with autism when he was five years old. He attends a mainstream primary school with support and has made good progress at school.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Christine - Interview 20
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Christine didn’t want to believe her son had autism because he had been misdiagnosed many years before.
Christine’s son, Brian, was diagnosed with Asperger syndrome four years ago after being wrongly diagnosed with schizophrenia when he was 14. He lives at home now after years in a residential home and attends an autism day centre during the week.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Carolann - Interview 36
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Carolann talks about Nita’s experiences at university and how the social support was not provided to help her.
Carolann’s daughter, Nita, was diagnosed with Asperger syndrome when she was 14. Nita has written a book about her experiences, had some unsuccessful experiences at university and is currently teaching herself Russian, Japanese, Spanish and Chinese.
Autism
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Parents of children on the Autism Spectrum
>>
Age 18+
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Tracy - Interview 13
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Tracy describes Nicola’s Further Opportunities Programme at college.
Tracy’s daughter, Nicola, was diagnosed with autism when she was six years old. Nicola is currently at a college for further education and will start working at the local hospital radio station when she finishes her course.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Daryll - Interview 6
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Daryll describes how Tiffany would need her own space at university and she would need someone to check her fridge, check that her laundry is done and
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Further education
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Further education
Further education
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Parents of children on the Autism Spectrum
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Further education
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Further education
Further education
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Karen - Interview 23
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Nicole found the transition to secondary school very difficult and “mentally and physically” she fell to bits.
Karen’s old daughter was diagnosed with Asperger syndrome when she was 10 years old. She has since been diagnosed with Oppositional Defiance Disorder and her mother has removed her from school because appropriate support was not provided.
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