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Nerves & brain
Parents of children on the Autism Spectrum
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The children :
The children
Background :
Background: Professor Tony Bailey
Road to discovery :
Early signs; developmental milestones
Early signs; behaviours and action
Getting a diagnosis; assessment and being told
Getting a diagnosis; referrals
Feelings about diagnosis
Thinking about labels
Everyday life :
Communication; understandings
Communication; relationships
Going out
Strategies for going out
Fears, anxieties, sensory issues and meltdowns
Special interests and routines
Eating and sleeping
Activities
Self help skills
Parents and their relationships :
Effect on parents; rewards
Effect on parents; health
Effect on parents; feeling like a bad parent
Effect on parents; worrying about the future
Effect on relationships
Siblings
Employment and finances
Changes over time :
Positive change over time
Growing up
Thinking ahead
Experiencing education :
Types of schooling
Difficulties in education; getting a statement
Difficulties in education; disliking school
Further education
Treatments :
Medical and dietary interventions
Therapies
Support :
Support groups
Respite care
Dealing with professionals
Causes
Factors that have helped
Information
Messages to parents
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Parents of children on the Autism Spectrum
Subject index
Clip
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Daryll - Interview 6
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Daryll thinks it would be easier if her daughter had “AS sort of tattooed on her forehead” so everyone knew.
Daryll’s daughter Tiffany was diagnosed with Asperger syndrome when she was 14 and is waiting for an agreement by social services to fund her social care during university.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel discusses how Jonathan will be included in activities but it is difficult for people to understand the support he needs.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Daniel - Interview 7
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Daniel feels has to constantly tell people about autism because they think he is bringing his son up wrong.
Daniel’s son, Jonathan, was diagnosed with autism in association with hyperlexia when he was aged 4. Daniel has home-schooled his son for the past four years.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Katrina - Interview 11
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Katrina describes how lovely it is not to have to excuse her son’s behaviour when she meets up with support group members.
Katrina’s son, Callum was diagnosed with atypical autism when he was four years old. Callum has been home schooled for the past couple of years after negative experiences in the education system. He is having cognitive behaviour therapy to help him overcome his fears and anxieties.
Autism
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Parents of children on the Autism Spectrum
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Age 12-17
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Rosie - Interview 18
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Rosie thinks a lot of people don’t understand or recognise autism; her son is a “bit quirky” but that is nothing to be afraid of.
Rosie’s son, Sam, was originally diagnosed with dyspraxia and then with autism when he was five years old. He attends a special school which has a specialist autism unit which he enjoys.
Autism
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Parents of children on the Autism Spectrum
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Age under 6
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Jane and Dan - Interview 57
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Jane and Dan talk about feeling upset and frustrated about their son’s diagnosis.
Jane and Dan’s son was diagnosed with autism six months ago. He has a sleep disorder and has some difficulties eating food.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Jacqui - Interview 31
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Jacqui says you have to fight for whatever your child needs; nothing is given to you very easily.
Five of Jacqui’s children are on the autistic spectrum and, as they have grown older, Jacqui has found that adult services have few resources and there is no support to help ease her children into employment.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Steve - Interview 37
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Steven thinks a lot of opportunities for children are being missed because teachers lack awareness about autism.
Steve and his son have been diagnosed with Asperger syndrome. Steve is studying for a degree in autism using distance learning and has heightened sensory sensitivities and some OCD traits.
Autism
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Parents of children on the Autism Spectrum
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Age 6-11
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Bobbi - Interview 30
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Bobbi explained Charlie’s differences to his classmates while they were on a school trip.
Bobbi’s younger son, Charlie, was diagnosed with autism when he was five. He attends a local primary school with support and is getting on very well.
Autism
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Parents of children on the Autism Spectrum
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Age 18+
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Ciaran - Interview 26
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Ciaran describes how, for his son, everything is black or white.
Ciaran’s son was diagnosed with autism eight years ago and also has epilepsy and dyspraxia. He is currently doing a course at a college of further education but Ciaran worries about what he will do next.
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