Sandy - Interview 1  

Sandy - Interview 1

Age at Interview: 38
Sex: Female
Background: Sandy, 38, lives with her two sons and is a full time carer. Ethnic background/nationality: White British.

Brief outline:Sandy’s older son, Joseph, aged 8, was diagnosed with autism one month before his second birthday. Her younger son, Adam, aged 6, was diagnosed with autism aged eighteen months. Both boys attend a special school which they enjoy.

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Joseph and Adam

 



For someone who hasn’t met Joseph I would say he is, he is very, I suppose for want of a better phrase, he is in your face, he is big, he is boisterous, he is loud, he is noisy, you know when he is about. He is like a bit of a whirlwind. He will whiz into a room sort of ‘rah rah rah rah rah rah’ and then whiz out and then five seconds later he will come back. He is very active for a rather strapping lad. But also he has got the most fantastic sense of humour as well and he really is just one of the funniest little boys you could ever imagine.
 
He has got perfect comic timing. He is also quite an intense little character as well. He is very deep. You can tell he is really deep in thought and he does tick a lot of things over in his head before he comes out and says something but then at the same time what he says can be so funny but he is trying to make you laugh and he is, I don’t know, he just loves interaction. He loves his drawings and he loves showing you what he is drawing because that helps. He is sort of thinking well look I am obviously going to have to draw it because she doesn’t understand what I am saying do you. And then once he has drawn it he is happy to sit down with you and talk about it and things. But he is a really happy little boy.
 
He is also very emotional. We do have some behavioural issues he can be quite destructive as well when he really wants to lose his temper. I mean we have been through, well three beds during the summer holidays that were destroyed by him bouncing around on them. We have had the bathroom flooded a couple of times and had to have a new ceiling put up in the kitchen. Just generally he will charge around and he will rip up things. Like if we have we have got unopened letters and things like that, he will rip them, he will rip books up.
 
Oh Adam is. He is like a big flitty fireball that just goes around. He really, really loves people being around doesn’t like wearing clothes in the house at all. It is all I can do, most of the time he just wears swimming trunks which he likes. And he is very much looking forward to … if Joseph has got sort of a tee shirt and pants on then Adam will wear his swimming trunks. If Joseph for a second takes his pants off then Adam instantly does as well. He copies Joseph everything even to the point of lifting Joseph’s tee shirt up to see if he has got anything on underneath. He is really quite bubbly.
 
He is almost like Tigger from Winnie the Pooh. He doesn’t ever stop moving. He is always bouncing up and down. He is quite noisy, although he doesn’t speak at all. But he has got his very own way of communicating. If he wants a drink he will just go and get a cup, and it is milk or something from fridge or if he wants maybe one of his rice krispie bars or something he will come and bring me the keys to the cupboard. So I know exactly what he wants.
 
Other people are getting the hang of what he wants as well. So he is sort of getting a bit more confident. And he has just started doing his ‘dee dee dee’ talk which is great. He is totally the opposite to Joseph in a way. They are very, very different characters. Adam is very fussy with his food, whereas Joseph will eat anything from, I don’t know little car tyres to raw chicken breast and things like that. Adam is literally chicken nuggets and chips for dinner. May be some peas and ketchup and that is it. He eats chicken nuggets for breakfast but he will eat bread and butter and a packet of crisps for lunch and that is his diet basically. He lives on soya milk and very rarely drinks anything else. He will drink squash if he has really got to, but it has got to be orange. His diet is very, very limited. But he actually seems to do very well on it.
 
At the moment he is not huge or anything. I am concerned about his heart and things obviously later on. Again he is very funny. He is very giggly. He is lovely if you can make the eye contact with him and start him giggling. He is very, very ticklish as well in fact sometimes you only have to go up to him and do that and he starts giggling and goes all silly. But he also loves kisses and cuddles and he always has done. He is a very affectionate little boy but it has to be on his terms a lot of the time. But he loves being around other children. But sometimes he just needs his time out as well.

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