Subject index 

Signs and symptoms


Signs and symptoms


Diagnosed with epilepsy in 1965 at age of 15 but had symptoms since around 3-4 years of age. Had neurosurgery at age of 14 though epilepsy is not well controlled. Current medication: carbamazepine (Tegretol) and levetiracetam (Keppra).
Carer (aged 44), of her son aged 22, who was diagnosed with epilepsy in 1982, at 16 months of age. Severe uncontrolled epilepsy and autism, symptoms of Lennox-Gastaut Syndrome, diagnosed in 1997. Has tried several different drugs, and ketogenic diet as a child. Currently on a gluten free and dairy free diet. Current medication: levetiracetam (Keppra) and carbamazepine (Tegretol).
Diagnosed with epilepsy in 1993. Has tried various different drug treatments, and has been seizure free for a year. Current medication: vigabatrin (Sabril), lamotrigine (Lamictal) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1980, shortly after having a stroke. Had severe uncontrolled epilepsy despite trying many different drug treatments. Had a Vagal Nerve Stimulator implanted in 2001, and has experienced a vast improvement both in seizure frequency and recovery time following a seizure. Current medication: carbamazepine retard (Tegretol Retard).
Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.
Diagnosed with epilepsy in the mid to late 70s. Seizures have been controlled since around 2000. Current medication: carbamazepine (Tegretol) and topiramate (Topamax).
Diagnosed with epilepsy in 1995. Tried a number of different drug treatments, and on average has about one seizure per year. Current medication: lamotrigine (Lamictal).
Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current medication: none.

Publication date: March 2003          Last updated: February 2012.

Review date: February 2014.

 

Epilepsy is the tendency to have recurrent seizures (fits). We interviewed 41 people about their experiences of this condition. Select from the key topics below, choose from the full list of topics, or explore all the interviews.

 

You may also be interested in young people with epilepsy, which can be found on youthhealthtalk.org.


Publication date: March 2003          Last updated: February 2012.

Review date: February 2014.

 

Epilepsy is the tendency to have recurrent seizures (fits). We interviewed 41 people about their experiences of this condition. Select from the key topics below, choose from the full list of topics, or explore all the interviews.

 

You may also be interested in young people with epilepsy, which can be found on youthhealthtalk.org.

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