• Clip
• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP22 >> Praised the information and care she received from the consultant, but wondered why she was not offered neurosurgery sooner.

Diagnosed with epilepsy in 1988. Tried various drugs, and had neurosurgery in 2000. Has been seizure free since surgery, and stopped taking medications (lamotrigine and carbamazepine) a few months after neurosurgery.

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP30 >> Discusses being an accredited volunteer for an epilepsy organisation.

Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.

• Nerves & brain >> Epilepsy >> Aged 50-69 >> Interview EP11 >> Explains that she found some of the information on the internet frightening.

Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current medication: none.

• Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP33 >> Explains that she would have liked more information from doctors.

Diagnosed with epilepsy in 2001. Has tried various drug treatments though seizures have not been controlled. Current medication: levetiracetam (Keppra) and clobazam (Frisium).

• Nerves & brain >> Epilepsy >> Aged 70 and over >> Interview EP38 >> Explains that he is satisfied with the information he has been given.

Diagnosed with epilepsy in 1996, which is not controlled. Was prescribed phenytoin (Epanutin) and sodium valproate (Epilim) in the past. Current medication: lamotrigine (Lamictal) daily, and clobazam when needed.

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP26 >> Explains that some consultants were much more informative than others.

Diagnosed with epilepsy in 1966. Has poorly controlled epilepsy and has tried various drug treatments over the years. Current medication: Slow-release carbamazepine (Tegretol Retard), gabapentin (Neurontin) and levetiracetam (Keppra).

• Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP16 >> Discusses searching for information on epilepsy when she was older and the importance of the internet for sharing it.

Diagnosed with epilepsy in 1992. Has tried sodium valproate (Epilim), lamotrigine (Lamictal) and topirimate (Topamax), though epilepsy is not controlled. Current medication: sodium valproate (Epilim) and topirimate (Topamax).

• Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP36 >> Discusses the benefits of searching for information on the internet, and found some sites better than others.

Diagnosed with epilepsy in 1998. Has tried sodium valproate (Epilim) and is currently taking lamotrigine (Lamictal), which has reduced the frequency and intensity of seizures but epilepsy is not controlled. Current medication: lamotrigine (Lamictal).

• Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP24 >> Describes seeking information on epilepsy when she wanted to change drugs, and recommends learning about the condition and asking questions.

Diagnosed with epilepsy in 1993. Has tried various different drug treatments, and has been seizure free for a year. Current medication: vigabatrin (Sabril), lamotrigine (Lamictal) and levetiracetam (Keppra).

• Nerves & brain >> Epilepsy >> Aged 50-69 >> Interview EP34 >> Explains that he was surprised to learn how many people have epilepsy.

Diagnosed with epilepsy in 1965. Has tried several different drug treatments, and had 14 years free of seizures. Epilepsy has been controlled again since 1997. Current medication: carbamazepine retard (Tegretol Retard), phenytoin (Epanutin) and diazepam (Valium).

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP21 >> Discusses the need for more information on and research into SUDEP.

Diagnosed with epilepsy in 1984, although had the condition throughout childhood as well. Has been seizure free since 1986, though had a status epilepticus episode in 1999 when medication was missed. Current medication: carbamazepine retard (Tegretol Retard) and clobazam (Frisium).

• Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP24 >> Voices her concerns about drugs and pregnancy, and the need for more information.

Diagnosed with epilepsy in 1993. Has tried various different drug treatments, and has been seizure free for a year. Current medication: vigabatrin (Sabril), lamotrigine (Lamictal) and levetiracetam (Keppra).

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP30 >> Explains that she would like more information about pregnancy for women with epilepsy.

Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP12 >> Recommends asking questions and getting explanations from doctors.

Diagnosed with epilepsy in 1965 at age of 15 but had symptoms since around 3-4 years of age. Had neurosurgery at age of 14 though epilepsy is not well controlled. Current medication: carbamazepine (Tegretol) and levetiracetam (Keppra).

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP09 >> Advises seeking information about epilepsy and learning more about the condition.

Diagnosed with epilepsy in 1990. Tried various drugs which did not control seizures. Had neurosurgery in 1998 in the USA. Experienced having seizures for 2 years after the surgery, but has been seizure free since November 2000. Current medication: carbamazepine retard (Tegretol Retard).

• Topic
• Nerves & brain >> Epilepsy >> Finding information >> Finding information

Finding information

• >> Epilepsy >> Finding information >> Finding information

Finding information

• Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP26 >> Expresses her concerns about an anti-epileptic drug and the risks of osteoporosis.

Diagnosed with epilepsy in 1966. Has poorly controlled epilepsy and has tried various drug treatments over the years. Current medication: Slow-release carbamazepine (Tegretol Retard), gabapentin (Neurontin) and levetiracetam (Keppra).