Subject index 

Diagnosed with epilepsy in 1984, although had the condition throughout childhood as well. Has been seizure free since 1986, though had a status epilepticus episode in 1999 when medication was missed. Current medication: carbamazepine retard (Tegretol Retard) and clobazam (Frisium).
Diagnosed with epilepsy in 1951. Has tried several different drugs, and been involved in various clinical trials. Had neurosurgery at the age of 20. Although respondent had 14 years without seizures, seizures returned and epilepsy is not controlled. Current medication: levetiracetam (Keppra), phenytoin (Epanutin) and clobazam (Frisium).
Diagnosed with epilepsy in 1965 at age of 15 but had symptoms since around 3-4 years of age. Had neurosurgery at age of 14 though epilepsy is not well controlled. Current medication: carbamazepine (Tegretol) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1995. Tried a number of different drug treatments, and on average has about one seizure per year. Current medication: lamotrigine (Lamictal).
Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1966, and had an epileptic stroke in 1986. Has tried various drugs over the years and is currently on lamotrigine (Lamictal), which has not controlled the epilepsy but has led to an improvement in quality of life between seizures. Current medication: lamotrigine (Lamictal).
Diagnosed with epilepsy in 1985. Seizures have been controlled since 1992. Current drug treatment is carbamazepine retard (Tegretol Retard) and sodium valproate (Epilim).
Diagnosed with epilepsy in 1988. Tried various drugs, and had neurosurgery in 2000. Has been seizure free since surgery, and stopped taking medications (lamotrigine and carbamazepine) a few months after neurosurgery.

Publication date: March 2003          Last updated: February 2012.

Review date: February 2014.

 

Epilepsy is the tendency to have recurrent seizures (fits). We interviewed 41 people about their experiences of this condition. Select from the key topics below, choose from the full list of topics, or explore all the interviews.

 

You may also be interested in young people with epilepsy, which can be found on youthhealthtalk.org.


Publication date: March 2003          Last updated: February 2012.

Review date: February 2014.

 

Epilepsy is the tendency to have recurrent seizures (fits). We interviewed 41 people about their experiences of this condition. Select from the key topics below, choose from the full list of topics, or explore all the interviews.

 

You may also be interested in young people with epilepsy, which can be found on youthhealthtalk.org.


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