Sources of support

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Sources of support

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Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP08 >> Discusses how family and friends support him.

Diagnosed with epilepsy in 1994, caused by a benign tumour that was found in 2001. At the time of interview, brain surgery was a possibility and would depend on test results. Current medication: carbamazepine retard (Tegretol Retard) and lamotrigine (Lamictal).

Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP30 >> Explains how calm and supportive her husband is.

Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.

Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP09 >> Praises the support she received from counsellors.

Diagnosed with epilepsy in 1990. Tried various drugs which did not control seizures. Had neurosurgery in 1998 in the USA. Experienced having seizures for 2 years after the surgery, but has been seizure free since November 2000. Current medication: carbamazepine retard (Tegretol Retard).

Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP24 >> Talks about the support she had from an epilepsy nurse.

Diagnosed with epilepsy in 1993. Has tried various different drug treatments, and has been seizure free for a year. Current medication: vigabatrin (Sabril), lamotrigine (Lamictal) and levetiracetam (Keppra).

Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP19 >> Explains how an epilepsy organisation supported him.

Diagnosed with epilepsy in 1985. Seizures have been controlled since 1992. Current drug treatment is carbamazepine retard (Tegretol Retard) and sodium valproate (Epilim).

Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP06 >> Is enthusiastic about joining a support group.

Diagnosed with epilepsy in 1989, which was caused by a brain tumour. Had radiotherapy and chemotherapy to treat the tumour, and seizures were reduced considerably. Felt better without medication and decided to stop taking anti-epileptic drugs. Current medication: none.

Nerves & brain >> Epilepsy >> Aged under 30 >> Interview EP33 >> Discusses the strength she received from her faith.

Diagnosed with epilepsy in 2001. Has tried various drug treatments though seizures have not been controlled. Current medication: levetiracetam (Keppra) and clobazam (Frisium).

Nerves & brain >> Epilepsy >> Carers of >> Interview EP29 >> Explains how her spirituality has helped her cope and understand.

Carer (aged 44), of her son aged 22, who was diagnosed with epilepsy in 1982, at 16 months of age. Severe uncontrolled epilepsy and autism, symptoms of Lennox-Gastaut Syndrome, diagnosed in 1997. Has tried several different drugs, and ketogenic diet as a child. Currently on a gluten free and dairy free diet. Current medication: levetiracetam (Keppra) and carbamazepine (Tegretol).

Nerves & brain >> Epilepsy >> Aged 50-69 >> Interview EP14 >> Describes how his dog helped when he was having a seizure.

Diagnosed with epilepsy in the mid to late 70s. Seizures have been controlled since around 2000. Current medication: carbamazepine (Tegretol) and topiramate (Topamax).

Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP01 >> Advises getting referred to a neurologist and accepting support form others.

Diagnosed with epilepsy in 1964. Tried various drugs but these did not control seizures. In an attempt to have an acceptable quality of life, decided to stop taking anti-epileptic drugs in 2001 and is on a Chinese/macrobiotic diet. Current medication: diazepam (Valium) when needed.

Nerves & brain >> Epilepsy >> Aged 30-49 >> Interview EP19 >> Advises joining epilepsy organisations, being open and carers to be patient and supportive.

Diagnosed with epilepsy in 1985. Seizures have been controlled since 1992. Current drug treatment is carbamazepine retard (Tegretol Retard) and sodium valproate (Epilim).

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