Subject index 

Diagnosed with epilepsy in 1966. Has poorly controlled epilepsy and has tried various drug treatments over the years. Current medication: Slow-release carbamazepine (Tegretol Retard), gabapentin (Neurontin) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1988. Tried various drugs, and had neurosurgery in 2000. Has been seizure free since surgery, and stopped taking medications (lamotrigine and carbamazepine) a few months after neurosurgery.
Diagnosed with epilepsy in 2000. Tried various drugs which did not control seizures and caused severe side effects. At the time of interview, participant had stopped taking all medication. Current medication: none.
Diagnosed with epilepsy in 1989, which was caused by a brain tumour. Had radiotherapy and chemotherapy to treat the tumour, and seizures were reduced considerably. Felt better without medication and decided to stop taking anti-epileptic drugs. Current medication: none.
Diagnosed with epilepsy in 1994. Tried various drug treatments, but epilepsy is not controlled. Current medication: phenytoin (Epanutin), phenobarbitone (Gardenal) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1982. Tried various drugs which did not control seizures. Had neurosurgery in 1984 at the age of 13 and in 1998 at the age of 28. Although there was some improvement in the seizures, epilepsy is poorly controlled. Current medication: carbamazepine retard (Tegretol Retard), vigabatrin (Sabril) and lamotrigine (Lamictal) daily, and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1981. Tried various drugs and, in 1999, had neurosurgery which reduced the frequency and intensity of seizures. Current medication: gabapentin (Neurontin) and carbamazepine retard (Tegretol Retard) daily, and clobazam (Frisium) around the time of menstruation.
Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1984, although had the condition throughout childhood as well. Has been seizure free since 1986, though had a status epilepticus episode in 1999 when medication was missed. Current medication: carbamazepine retard (Tegretol Retard) and clobazam (Frisium).
Diagnosed with epilepsy in 1974. Epilepsy is not controlled and the possibility of neurosurgery was being considered at time of interview. Current medication: carbamazepine retard (Tegretol Retard).
Diagnosed with epilepsy in 1965. Has tried several different drug treatments, and had 14 years free of seizures. Epilepsy has been controlled again since 1997. Current medication: carbamazepine retard (Tegretol Retard), phenytoin (Epanutin) and diazepam (Valium).
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