Subject index 

Carer (aged 44), of her son aged 22, who was diagnosed with epilepsy in 1982, at 16 months of age. Severe uncontrolled epilepsy and autism, symptoms of Lennox-Gastaut Syndrome, diagnosed in 1997. Has tried several different drugs, and ketogenic diet as a child. Currently on a gluten free and dairy free diet. Current medication: levetiracetam (Keppra) and carbamazepine (Tegretol).
Diagnosed with epilepsy in 1985. Has tried several different drug treatments, and had 4 years free of seizures. Seizures restarted in 1996 and epilepsy is currently not completely controlled. Current medication: carbamazepine (Tegretol) daily and clobazam (Frisium) when needed.
Diagnosed with epilepsy in 1965 at age of 15 but had symptoms since around 3-4 years of age. Had neurosurgery at age of 14 though epilepsy is not well controlled. Current medication: carbamazepine (Tegretol) and levetiracetam (Keppra).
Carer (aged 48), for her husband (aged 54), who was diagnosed with epilepsy in 1989, aged 42. Tried several different drug treatments. Epilepsy is poorly controlled. Current medication: carbamazepine (Tegretol), sodium valproate (Epilim) and levetiracetam (Keppra).
Diagnosed with epilepsy in 1964. Tried various drugs but these did not control seizures. In an attempt to have an acceptable quality of life, decided to stop taking anti-epileptic drugs in 2001 and is on a Chinese/macrobiotic diet. Current medication: diazepam (Valium) when needed.
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